+ Reply to Thread
Page 1 of 2 1 2 LastLast
Results 1 to 10 of 17

Thread: We Have Craniosynostosis Awareness Ribbons!

  1. 03-16-2011 03:06 PM #1
    Jenny
    Jenny is offline
    Jenny has a spectacular aura about Jenny has a spectacular aura about Jenny's Avatar
    Join Date
    Nov 2004
    Location
    southeast MI
    Age
    32
    Posts
    5,855
    Rep Power
    51

    Default We Have Craniosynostosis Awareness Ribbons!

    Hi Ck'ers!

    *Please do not change the design of the ribbon. We have had several parents receive ribbons with incorrect images on them due to changes.* Thank you

    I'm excited to introduce magnet awareness ribbons! Click on the link below to order. They can be either magnets or stickers, you just pull down what you want on the menus. You can also share on FB and other places via the links on the page, and copy the coding to import to blogs, etc. Enjoy!

    http://www.supportourribbons.com/cus...CranioKids.org

    ETA: I have also added an oval magnet/sticker as well!
    http://www.supportourribbons.com/cus...CranioKids.org

    ETA Again: Shipping starts off at just 99 cents!
    Last edited by Katie; 11-08-2011 at 04:06 PM.
    Jenny
    Mikayla ~ February 18, 03 Bi-Coronal Craniosynostosis-read her story http://craniokids.org/support/showth...hlight=mikayla
    Anabelle ~ 10/05
    Jaden Michael ~ 9/08


    Reply With Quote Reply With Quote
  2. 03-16-2011 03:27 PM #2
    Christina's_Mommy
    Christina's_Mommy is offline
    Fan of Dr. Fearon and crew Christina's_Mommy is just starting out Christina's_Mommy's Avatar
    Join Date
    Aug 2007
    Location
    Fort Smith, Arkansas
    Age
    30
    Posts
    1,828
    Blog Entries
    1
    Rep Power
    23

    Default

    Thanks!!
    Carol

    Mom to Christina - 4 yrs
    http://www.caringbridge.org/visit/little_christina Our Story

    Bifrontal/Biparietal CVR/FOA Feb 27th 08 for Bicoronal. (Fearon,Swift), Developmental Delays, Hearing Loss, Narrowed Brain Ventricles, Moderate Asthma, Acid Reflux & Migraines. ICP monitor April 27th with Dr. Swift - Has borderline ICP. Follow up with Swift 9-12-11, Again 3-7-12. surgery #2 in about a year... EEG done 1-17-12 for headaches.

    Reply With Quote Reply With Quote
  3. 03-16-2011 03:52 PM #3
    Jennifer
    Jennifer is offline
    Administrator Jennifer has a spectacular aura about Jennifer has a spectacular aura about Jennifer has a spectacular aura about Jennifer's Avatar
    Join Date
    Aug 2004
    Location
    Oregon- Portland Metro Area
    Age
    37
    Posts
    302,906
    Rep Power
    10

    Default

    Great job Jenny!


    Side note--- this does not create a profit for CK...it was only put out there for awareness!
    Jennifer
    Mom to- Sarah(13), Reese(10), Emily (8.5) & Cody (3)
    Emily diagnosed w/ Rt. Coronal Cranio corrected in '04 w/ Dr. Wehby in Portland, OR
    Reply With Quote Reply With Quote
  4. 03-16-2011 03:53 PM #4
    Janet
    Janet is offline
    Registered User Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet's Avatar
    Join Date
    Mar 2007
    Location
    Mississauga, Ontario, Canada
    Age
    39
    Posts
    20,403
    Blog Entries
    3
    Rep Power
    123

    Default

    Great job Jenny as always!
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips

    Reply With Quote Reply With Quote
  5. 03-16-2011 04:08 PM #5
    jjmc123
    jjmc123 is offline
    On the other side again! jjmc123 is just starting out jjmc123's Avatar
    Join Date
    May 2007
    Age
    32
    Posts
    4,520
    Rep Power
    37

    Default

    Very cool!
    Cindy

    Mom to Logan (12/8/2006) - Left Coronal

    Hospital - Connecticut Children's Medical Center (CCMC)
    Surgeons - Dr. Kanev & Dr. Casteglione
    1st Surgery (7/21/2007) - CVR & ear tubes
    2nd Surgery (    2/18/2011) - CVR #2

    Patch therapy for amblyopia (lazy eye)
    8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60     *** 8/6/12 - 20/50

    http://www.caringbridge.org/visit/logansullivan
    Reply With Quote Reply With Quote
  6. 03-16-2011 04:25 PM #6
    AJ's Mommy
    AJ's Mommy is offline
    AJ's Mommy AJ's Mommy will become famous soon enough AJ's Mommy's Avatar
    Join Date
    Jul 2009
    Location
    Seattle, WA
    Posts
    3,689
    Rep Power
    28

    Default

    Love them!! Good job!!
    ~~Shelby~~

    AJ~Sagittal Craniosynostosis
    ~Surgery 10-6-2009 At Seattle Children's Hospital
    ~Dr. Ojemann and Dr. Gruss~

    Cranio Care Bears
    www.craniocarebears.org
    Reply With Quote Reply With Quote
  7. 03-16-2011 06:11 PM #7
    Jenny
    Jenny is offline
    Jenny has a spectacular aura about Jenny has a spectacular aura about Jenny's Avatar
    Join Date
    Nov 2004
    Location
    southeast MI
    Age
    32
    Posts
    5,855
    Rep Power
    51

    Default

    I also added an oval version. Link is above in the first post. Thanks everyone!
    Jenny
    Mikayla ~ February 18, 03 Bi-Coronal Craniosynostosis-read her story http://craniokids.org/support/showth...hlight=mikayla
    Anabelle ~ 10/05
    Jaden Michael ~ 9/08


    Reply With Quote Reply With Quote
  8. 03-16-2011 08:49 PM #8
    Jenny
    Jenny is offline
    Jenny has a spectacular aura about Jenny has a spectacular aura about Jenny's Avatar
    Join Date
    Nov 2004
    Location
    southeast MI
    Age
    32
    Posts
    5,855
    Rep Power
    51

    Default

    I ordered mine! One ribbon and one oval. Shipping was $2!
    Jenny
    Mikayla ~ February 18, 03 Bi-Coronal Craniosynostosis-read her story http://craniokids.org/support/showth...hlight=mikayla
    Anabelle ~ 10/05
    Jaden Michael ~ 9/08


    Reply With Quote Reply With Quote
  9. 03-16-2011 09:18 PM #9
    audra15
    audra15 is offline
    audra15 is on a distinguished road audra15's Avatar
    Join Date
    Sep 2009
    Location
    New Jersey
    Age
    35
    Posts
    2,272
    Rep Power
    20

    Default

    Exciting!
    Beth
    Kyra Rose - born 5/25/09
    sagittal surgery -10/14/09 at CHOP
    Reply With Quote Reply With Quote
  10. 03-17-2011 09:44 AM #10
    tracy_girl05
    tracy_girl05 is offline
    tracy_girl05 is just starting out tracy_girl05's Avatar
    Join Date
    Aug 2008
    Location
    Kansas
    Age
    29
    Posts
    2,859
    Rep Power
    26

    Default

    YAY how great!!!!!!
    Crystal Proud momma to-

    Hailey Lynn- 12/29/07, Left Coronal Cranio baby-surgery with Dr. Fearon 10/27/08

    WE ARE ON THE OTHER SIDE!!!!!!!!!

    http://www.caringbridge.org/visit/haileytracy

    Reply With Quote Reply With Quote
+ Reply to Thread
« Previous Thread | Next Thread »

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts

Forum Rules