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Thread: Ava's Journey

  1. 03-04-2011 01:22 PM #1
    Ava's Mommy
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    Default Ava's Journey

    Hi all - thank you so much for your support and kind comments on our blog, www.craniofoundation.org.
    Ava is scheduled for full cranial vault reconstruction surgery at Sick Kids Hospital in Toronto on April 7th. We will be under the excellent care of Dr. Phillips and Dr. Drake.
    Janet - you have been excellent - and so have many others of you sharing your experiences and hope.
    Your prayers are appreciated, and we will definitely keep the blog updated as this process begins on April 5th.
    Again - thanks for sharing the blog and promoting awareness.
    You are all giving me much strength and courage in a time when it's really needed.
    Love Ava's mommy
    Proud mommy of Ava Jane.
    Born with Mercedes Benz Cranio
    Date of surgery #1: March 16, 2010
    Date of surgery #2: April 7, 2011
    Blog: www.craniofoundation.org
  2. 03-05-2011 07:00 AM #2
    Zara's mum
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    Hi Ava's mummy,

    For some reason i dont seem to have "met" you - Ava is simply beautiful - I will follow your blog closely and wish you all the best in Ava's upcoming surgery xx
    Chloe,



    Mum to 3 beautiful children-

    Aaron 12/2/02
    Joey 5/3/06
    Zara 16/12/07 our little princess-right unicoronal. Surgery 29th April 2009. Great Ormond Street Hospital

    Zara's craniofacial journey http://www.youtube.com/watch?v=DtNbSmC8LNU
  3. 03-05-2011 07:46 PM #3
    Ava's Mommy
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    Thank you Chloe! I appreciate your support...
    Your little girl is gorgeous and I love her name...
    Please keep in touch :). xo
    Proud mommy of Ava Jane.
    Born with Mercedes Benz Cranio
    Date of surgery #1: March 16, 2010
    Date of surgery #2: April 7, 2011
    Blog: www.craniofoundation.org
  4. 03-06-2011 02:50 PM #4
    G2sMama
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    Not long now!! You'll be on the other side before you know it!! Ava is simply beautiful.
    Dawn
    G1 - 05/2008 (no cranio)
    G2 - 05/2010 (metopic/trig) Endoscopic release 08/2010 @ St Louis Children's Hospital w/ Dr Woo & Dr Smyth. Graduated helmet therapy 05/18/2011
  5. 03-08-2011 12:15 PM #5
    AddiesGramma
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    will be keeping you in my Prayers ... just remember that these little ones seem to do amazingly well
    little Addie Mae's surgeries
    Devos Childrens Hospital Grand Rapids, Michigan
    March 2009 CVR
    Oct 2009 CVR & FOA
    April 2010     Chiari Malformation surgery & tethered spine surgery

    http://www.craniokids.org/support/showthread.php?t=9222
  6. 04-08-2011 09:12 AM #6
    Janet
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    I just read your blog about the surgery day She looks great. I'm so happy for you guys. The pictures in the waiting room in the red car brought me right back to when Fi had her first surgery. Dr Phillips is really amazing.
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips

  7. 04-08-2011 10:53 AM #7
    Nezzy
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    Glad surgery went well. I hope she is recovering well today. Hang in there mommy.
    Heather
    Nicholas - born 3/4/09. Sagittal Synostosis. Posterior CVR 9/15/09 with Dr. Fearon and Dr. Sacco - Medical City Dallas.
    http://www.caringbridge.org/visit/NicholasNezich
    http://www.onetruemedia.com/shared?p...3242&skin_id=0
  8. 04-08-2011 11:55 AM #8
    Ava's Mommy
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    Thanks! So far so good. She's throwing up a lot, and I'm hoping they'll let me give her some formula soon, but she's hanging in there. It's now about 12 hours past her surgery. Thanks for all your support...xoxox
    Proud mommy of Ava Jane.
    Born with Mercedes Benz Cranio
    Date of surgery #1: March 16, 2010
    Date of surgery #2: April 7, 2011
    Blog: www.craniofoundation.org
  9. 04-08-2011 12:45 PM #9
    Janet
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    Fiona had a hard time as well, she was on sugar water for the first day (plus IV fluids), that's the only thing she could keep down while she was in the ICU. When we moved upstairs she started on formula again and did a lot better, I think it also helped when they eased up a little on the morphine.
    Congrats again!
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips

  10. 04-08-2011 01:13 PM #10
    Nezzy
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    Aw..poor thing. Can they give her Zofran for the vomitting?
    Heather
    Nicholas - born 3/4/09. Sagittal Synostosis. Posterior CVR 9/15/09 with Dr. Fearon and Dr. Sacco - Medical City Dallas.
    http://www.caringbridge.org/visit/NicholasNezich
    http://www.onetruemedia.com/shared?p...3242&skin_id=0
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