Evan is in surgery
Here is my little man just prior to surgery. He isn't liking his pink gown.
So far we are 1/3 the way into surgery and everything is going well.
I'm a nervous wreck but I am holding it together so far. I know when I see him after i'll cry.
Today is definitely the hardest day of my life.
I cried when I first saw Fi in the ICU, it's overwhelming but it's so worth it in the end
Mom to Noah (no cranio)
Fiona (Metopic):
Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips
Hang in there momma- your little cutie will do great!
Kristin, Momma of two rambunctious cuties:
Lucy born 3/05 "failure to thrive"- negative percentile on growth chart for weight 3/06 to 3/08
Xander born 3/08 Left Lambdoid Synostosis and Chiari Malformation- Posterior CVR Surgery 2/09 w/ Dr Fearon and Dr Sacco at Medical City Hospital Dallas, TX (fought insurance and won in network gap exception) rant rant rant....
Stay strrong...your almost there! .
Mommy of
Daughter: Braylee - 1/7/09 - No Cranio
Son: Brentley - 6/28/10 - Originally misdiagnosed as Left Coronal Cranio and then diagnosed with Frontosphenoidal Synostosis (one of 6 in the entire world!!) - CVR surgery on 12/21/10 at Children's Hospital in Denver, Co with Dr. Winston & Dr. Ketch
Read more about our story here
http://craniokids.wordpress.com/
WE'RE ON THE OTHER SIDE!!!!! Now mentor and send loving care packages to families going through it!
www.CranioCareBears.org
Good luck! He will do great, it is so tough on us parents though. Wishes for a quick recovery!
Owen-9/5/06 no cranio
Brynn-7/27/10 left coronal, CFND syndrome
Frontal orbital advancement Feb 14, 2011
Eye muscle surgery August 2, 2011 and May 22, 2012
It's been nice texting with you today! Hard to think about what our little ones are going through right now, but it's nice to know I'm not alone today in my worries. I hope things continue to go well with little Evan. Keep us posted!
Kristin, Chronic Lyme Disease
Big Sister Bear 9/2005
Little Brother Monkey 6/2009, Metopic Cranio dx at 12 mos, CVR/FOA at 20 mos.Drs. Martin and Castiglione, Connecticut Children's Medical Center (Autism Spectrum Disorder)
Monkey's Blog: http://www.MetopicMonkey.blogspot.com
Evan's almost there! The 1st day is the hardest. I hope Monkey is joining you in a quick recovery today!
Cindy
Mom to Logan (12/8/2006) - Left Coronal
Hospital - Connecticut Children's Medical Center (CCMC)
Surgeons - Dr. Kanev & Dr. Casteglione
1st Surgery (7/21/2007) - CVR & ear tubes
2nd Surgery (2/18/2011) - CVR #2
Patch therapy for amblyopia (lazy eye)
8/4/11 - 20/500 *** 10/14/11 - 20/250 *** 1/13/12 - 20/60 *** 4/13/12 - 20/60*** 8/6/12 - 20/50
http://www.caringbridge.org/visit/logansullivan
Almost there!!! It's ok to cry. Were here for you!!
~~Shelby~~
AJ~Sagittal Craniosynostosis
~Surgery 10-6-2009 At Seattle Children's Hospital
~Dr. Ojemann and Dr. Gruss~
Cranio Care Bears
www.craniocarebears.org
Thinking of you! Its perfectly normal to cry! Hang in there momma!
Carmen
Mother of 2 Girls, 4 Boys!
Mateo Tolentino 10/21/09
Dx - 07/08/10 Sagittal Synostosis Surgery Date: 08/23/10
Dr Singh (CFS) Dr Shafron (NS)
We are on the other side
Lucas Jeremiah 11/25/10
Dx - 03/31/11 Plagio/TorticollisHelmet Therapy 06/03/11
Dx - 07/20/11 Mild Metopic W/Trig (wait and see)
Thinking of you! Hope all is continuning to go well! I held it together the entire day, until I saw him...then I left his room and broke down in my daddy's arms. It's a hard day! Hang in there!
Melissa
Mom to 2 beautiful angels!
Kayla (8/99)
Logan (7/07)
Metopic sugery Nov. 7, 07'
www.caringbridge.com/visit/loganschaefer
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