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Thread: Bridges4Kids- US resources by state

  1. 02-02-2011 10:11 PM #1
    Katie
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    Default Bridges4Kids- US resources by state

    This has some great information for programs most people are not aware are available, and craniosynostosis is a qualifying condition for many of the services (health insurance, early intervention etc...) If anyone knows of a site similar to this for outside the US, please let us know!

    http://www.bridges4kids.org/HelpForKids-US.html
    Momma to Dillon 6/25/04 (metopic and bicoronal) and Aaron 2/24/08, and wife to Doug.
    CVR/FOA 11.16.04 @ 4.5 months old
    Second surgery 1.5.10 @ 5.5 years old (all went excellent!)
    Dr. Ian Jackson and Dr. Karol Zakalik Providence Hospitals, MI
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  2. 02-03-2011 07:11 AM #2
    Bensstory
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    Thanks for the website info! I'll check it out.
    ~Breanne Olson, mother to Benjamin and wife to Seth
    ~Benjamin born on 12/2/10-diagnosed on 1/26/11 with metopic craniosynostosis
    ~Surgery date set for October 28, 2011 with Dr. Fearon at Medical City Children's Hopsital in Dallas, TX
    Visit Ben's blog: http://bensstory120210.blogspot.com/
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  3. 02-07-2011 01:56 PM #3
    momof2withcranio
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    Thank you. What an interesting site. lots of good info.
    Mother to 5 beautiful children. My youngest 2 were born with Saggital. Jacob-surgery 6/9/03 Sean-surgery 4/7/05.
    Sean has partial epileptic seizures and some dental issues and sleep apnea (seans 6 yr craniversary)
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