Do-rag??????? What is it???
Do-rag??????? What is it???
Proud Mum of Bianca, Kayla & Adrian
ADRIAN JOHN
Born 23rd August, 2008 with severe Metopic Cranio(Trigoncephlay) and extra little thumb on his left hand
Surgery 28th April, 2009
Its like what a doctor, pirate, or biker would wear....I don't have pics yet. Will soon :) It is like a bandana that ties in the back. If you would like one, let me know. They are being made now!
Sheila
Wife to Jason
Mom to:
Kyler 5-27-07 ~ no cranio
Avery 10-14-09 ~ right uni-coronal cranio, supraventricular tacchyacardia (svt), scoliosis, torticollis, ocular tumor
1st Surgery April 20, 2010
2nd surgery - TBD
Cranio Angel Network for Craniosynostosis:
www.cranioangelnetwork.com
Providing flower headbands and do-rags for cranio kids of all ages.
Follow Cranio Angels at:
http://www.facebook.com/cranioangelnetwork
FREE Do-rags (BOYS) & Headbands (GIRLS) for Cranio Kids!
I have started a program for Cranio girls & boys called Avery's Angel Network and I am so excited! I make flower headbands for baby girls to wear post-surgery to help cover their scar & NOW I have do-rags for the boys. If you would you like a flower headband for you cranio girl or do-rag for your Cranio boy just email me:
Email: averysangelnetwork@gmail.com
Subject: Free headband or Free Do-rag
Include in Message:
-your name
-your daughter or son's name (please specify)
- home address
-type of cranio
-date of surgery
I will try and send them out based on surgery date.
I have a website up (www.averysangels.net) and in it I include a blog for all of "Avery's Angels" in the "Meet the Angels" section and would appreciate it if recipients of the headbands & do-rags would email me back a picture wearing the headband/do-rag, and message about their cranio-kid to include in the blog and to help create awareness of Craniosynostosis. (However, this is not required to receive a headband/do-rag)
As some of you know, my daughter had surgery on April 20, 2010 and will unfortunately be undergoing another surgery. Making headbands is a bit of a stress-reliever as I await the next surgery.
Please help keep this thread at the top of the message boards so all cranio-kids can be included ;-)
Thanks ladies....you have all helped me so much throughout the last year!!!
My Facebook Page is up, please become a fan of: Avery's Angels
Link: http://www.facebook.com/pages/Averys...67969096565112
~Sheila
Last edited by averysmom; 01-21-2011 at 05:32 PM.
Sheila
Wife to Jason
Mom to:
Kyler 5-27-07 ~ no cranio
Avery 10-14-09 ~ right uni-coronal cranio, supraventricular tacchyacardia (svt), scoliosis, torticollis, ocular tumor
1st Surgery April 20, 2010
2nd surgery - TBD
Cranio Angel Network for Craniosynostosis:
www.cranioangelnetwork.com
Providing flower headbands and do-rags for cranio kids of all ages.
Follow Cranio Angels at:
http://www.facebook.com/cranioangelnetwork
Oh yea! So cool! Thank you for all that you do!
Mommy of
Daughter: Braylee - 1/7/09 - No Cranio
Son: Brentley - 6/28/10 - Originally misdiagnosed as Left Coronal Cranio and then diagnosed with Frontosphenoidal Synostosis (one of 6 in the entire world!!) - CVR surgery on 12/21/10 at Children's Hospital in Denver, Co with Dr. Winston & Dr. Ketch
Read more about our story here
http://craniokids.wordpress.com/
WE'RE ON THE OTHER SIDE!!!!! Now mentor and send loving care packages to families going through it!
www.CranioCareBears.org
Thank you again, for all the awareness that this brings our kiddos. I totally can't wait to get one for Mateo!
Carmen
Mother of 2 Girls, 4 Boys!
Mateo Tolentino 10/21/09
Dx - 07/08/10 Sagittal Synostosis Surgery Date: 08/23/10
Dr Singh (CFS) Dr Shafron (NS)
We are on the other side
Lucas Jeremiah 11/25/10
Dx - 03/31/11 Plagio/TorticollisHelmet Therapy 06/03/11
Dx - 07/20/11 Mild Metopic W/Trig (wait and see)
You are more than welcome ladies :) It is fun for me to do!!!!
Sheila
Wife to Jason
Mom to:
Kyler 5-27-07 ~ no cranio
Avery 10-14-09 ~ right uni-coronal cranio, supraventricular tacchyacardia (svt), scoliosis, torticollis, ocular tumor
1st Surgery April 20, 2010
2nd surgery - TBD
Cranio Angel Network for Craniosynostosis:
www.cranioangelnetwork.com
Providing flower headbands and do-rags for cranio kids of all ages.
Follow Cranio Angels at:
http://www.facebook.com/cranioangelnetwork
Sheila,
Thank you so much for Maria's headband. We love it!!!
Trisha
Mom to Jakob 12/25/2000, Andrew 4/3/2002 and
Maria, born 3/1/2008 adopted into our family 8/23/10. Diagnosed with right coronal cranio 9/24/10
Surgery with Dr. Fearon & Dr. Sacco 2/28/11
We are on the other side
http://craniokids.org/support/pictur...ictureid=14047
AJ sporting his new do-rag!! Thank you Sheila!!
~~Shelby~~
AJ~Sagittal Craniosynostosis
~Surgery 10-6-2009 At Seattle Children's Hospital
~Dr. Ojemann and Dr. Gruss~
Cranio Care Bears
www.craniocarebears.org
Here's lil Brentley in his. He loves it! Thanks again Sheila!
Mommy of
Daughter: Braylee - 1/7/09 - No Cranio
Son: Brentley - 6/28/10 - Originally misdiagnosed as Left Coronal Cranio and then diagnosed with Frontosphenoidal Synostosis (one of 6 in the entire world!!) - CVR surgery on 12/21/10 at Children's Hospital in Denver, Co with Dr. Winston & Dr. Ketch
Read more about our story here
http://craniokids.wordpress.com/
WE'RE ON THE OTHER SIDE!!!!! Now mentor and send loving care packages to families going through it!
www.CranioCareBears.org
Monkey got his do-rag today! Thank you so much, it is fabulous!!! I might take a "before" picture in it tomorrow, since his trig always looks so much more pronounced when he wears a hat. It will be interesting to see a before and after comparison, once his surgery is over and his incision has healed a bit.
Is there a cranio significance to the crack in the skull, or is that just a coincidence?
Kristin, Chronic Lyme Disease
Big Sister Bear 9/2005
Little Brother Monkey 6/2009, Metopic Cranio dx at 12 mos, CVR/FOA at 20 mos.Drs. Martin and Castiglione, Connecticut Children's Medical Center (Autism Spectrum Disorder)
Monkey's Blog: http://www.MetopicMonkey.blogspot.com
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