33 year old adult with sagittal stynosis (treated)

[robin_pta]

I am a 33 yo female with treated sagittal stynosis. I was inquiring to see if there are any others out there who face any issues with depression/anxiety or any related disorders (not concerning cosmetic issues). I was also interested on any information on the chance of potentially conceiving a child with the same defect. My brother and I were both diagnosed at birth (we're 4 years apart) and were both treated. He had about 5 surgeries to my one. He has a 3 y.o whom was not affected. Thanks, Robin

[cheryl2]

Hello Robin, I would guess that since your brother also had cranio, that your condition is possibly syndromatic. It would still be tough to say the probability of your potential children inheriting cranio. In my case, both my daughter and I have a syndrome called Saethre Chotzen, which caused my daughter's cranio. Even though I too have the syndrome, I did not have cranio. I do have other features of the syndrome, however. The geneticist told us that any of my offspring has a 50/50 chance of inheriting SCS. But since the features of the syndrome vary so widely, it is impossible to tell for sure the probability that the child will have cranio.

I hope that makes sense.

Take care :)

[Tristen Greenleaf]

Robin,
I am a 40 year old with treated sagittal but no evidence points toward my condition being syndromatic, as no one else in my family has it. I do suffer from depression and anxiety however. The depression part runs in my family but not so much the anxiety. I too only had one surgery. I'd love to see photos! I have some posted. Pre/ Post surgery. Thanks for sharing your story!

[*jules*]

Hi Robin. I have no answers to your questions, but wanted to welcome you to CK. We have several cranio adults here (treated and untreated) and I'm sure they'll be a great source of info and advice for you :)

[monty]

Hi sorry I've taken a while to respond, Not known what to say. dont know whether my fluctuating depression/anxety is congenital or a product of my experience.

Anyway Hi though and welcome, welcome, welcome. You've found a nice place!!

[mary_vance]

Hi there!! Im 29 and had unilateral coronal on the right. I too have suffered depression/anxiety issues, none of which are cosmetic related. I have a 7 year old son who did not have cranio. We should chat sometime!!

[Jenny]

Hi there! I'm 30 years old, bicoronal, corrected, and syndromic. I also have anxiety/OCD issues, not related to cranio, but just life, lol. I am married and have three kiddos. My first also inherited my cranio, but my second two did not. With syndromic cranio, it is a 50/50 chance of the child inheriting it. If it is not syndromic, then the percentage only goes up slightly from and other person. If you are considering children, keep in mind that cranio is correctable. You will want to keep in mind if it is syndromic, what other effects the syndrome my come along with. Most cranio cases do not have complications, but rarely there are. In your case, being saggital and single suture, the likelihood of syndromic complications is slim. I hope that helps you out some.

[monty]

Wonder whether it would be possible to do a poll of all adults whether treated or untreated, syndromic or non syndromic to see if there are any discernable patterns?

I for one would be very interested in the results

[Katy]

My sister has untreated Coronal. Re the genetic factor, my little Olivia had very mild metopic but hasn´t needed any surgery.
My Sister has lived on anti depressants for years. She has other issues as well, hormonal ( balding to the extent she has to wear a wig ), constant migrains and double vision.

[monty]

My sister has untreated Coronal. Re the genetic factor, my little Olivia had very mild metopic but hasn´t needed any surgery.
My Sister has lived on anti depressants for years. She has other issues as well, hormonal ( balding to the extent she has to wear a wig ), constant migrains and double vision.

Poor women! Is there nothing that can be done for her?