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Thread: A bit frustrated..ok majorly!!

  1. #11
    ultamom ultamom's Avatar
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    The update.. I spoke with the NS this morning. He said for me to keep watching her closely and he wants to see her Monday morning.
    Cay

  2. #12
    Brendan' Mummy BrendansMummy is on a distinguished road BrendansMummy's Avatar
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    Good job mama! Please keep us posted
    Lisa,
    Joshua
    6 years - Bilateral Talipes (club feet) surgical corrections at 9 weeks, 9 months and 3 years.
    Autism spectrum disorder

    Sophia
    4 years, dilated ureta causing frequent UTI's

    Brendan
    2 years - Metopic. FOA/CVR preformed March 25 2010 at The Sydney Children's hospital, Randwick.
    Dr. Jeremy Hunt & team

  3. #13

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    Good luck w/ the NS appt. Thank god u knew what to look for!!!!!!
    -Jenn

    Mom of twins Georgie (plagio) and
    Hunter (metopic) born on 5.25.10
    and Shane (no cranio)


    metopic surgery DONE on 12/9/10 at Cohen's Children's Hospital on Long Island

    touch up surgery ETA: winter 2013 :(

  4. #14
    JDBtrigonobaby JDBtrigonobaby's Avatar
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    i can't believe your ped. dismissed your concern! that sure can be frustrating, especially for you, when you know what you're looking at!
    good luck! way to be persistent!
    Melissa
    Mom of twin boys & beautiful new baby girl
    ~Joseph (trigonocephaly secondary to metopic craniosynostosis, CVR 10/8/10 w/ Fearon & Sacco)
    ~Dominic
    ~Mia


    WE ARE ON THE OTHER SIDE!!!

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