Surgery Date is Set--November 11th!
Hi Everyone,
Thanks to all the great advice and support from this site in guiding me through the process we have a endoscopic surgery set for November 11th with Jimenez and Barone in San Antonio. My son will be only 3 weeks old. I'm totally terrified but also excited for him at the same time.
Nancy
Congrats Nancy-
I'm sure you are nervous but I think it's awesome that you got a date so quick- I had to wait over five months for my sons surgery and the waiting was grueling. Will your insurance will pay for helmet therapy? I hope you have that part all worked out...
Anyway, good luck and keep us posted!! Try not to worry as the kids all do really well with surgery, it's hardest on us parents!!
Kristin, Momma of two rambunctious cuties:
Lucy born 3/05 "failure to thrive"- negative percentile on growth chart for weight 3/06 to 3/08
Xander born 3/08 Left Lambdoid Synostosis and Chiari Malformation- Posterior CVR Surgery 2/09 w/ Dr Fearon and Dr Sacco at Medical City Hospital Dallas, TX (fought insurance and won in network gap exception) rant rant rant....
Oh bless him he's so young but he will amaze you at how well he copes.
Not long to wait for you now so hang in there & stay strong, were right with you every step of the way x
Jacqui - mummy to Charlie, Metopic cranio & Harry (no cranio)
Surgery carried out on 6th Sep 2007
CVR/FOA at John Radcliffe Hospital Oxford
Surgeon - David Johnson
Charlie's Metopic Journey - www.craniokids.org/support/showthread.php?t=16222
Oh it great you have a date! Hang in there
~~Shelby~~
AJ~Sagittal Craniosynostosis
~Surgery 10-6-2009 At Seattle Children's Hospital
~Dr. Ojemann and Dr. Gruss~
Cranio Care Bears
www.craniocarebears.org
That´s amazing that you got a date so quickly. Bless his little soul, 3 weeks old. I´ll be thinking of you.
KATY
Mummy to Benjamin, Theresa, Claudia and Olivia, mild metopic, wait and see
Thats amazing, they don't do endo in the UK so would have been waiting over a year by the time we get to Aaron having the op. I am very jealous in a way! It will be over before you know it. Hope everything goes well. I am sure he will amaze you with his strength.
Sam...
Proud mummy to A born 12/2009.
Diagnosed at 4 weeks with Metopic Suture Synotosis with Trigonocephaly.
My very brave and gorgeous boy!
That's so close!! Best wishes for a smooth surgery and speedy recovery.
Kathy, Mum to:
Matthew Oct 2002
Grace July 2004
Liam July 2006
Rhys 30 April 2010, Sagittal cranio, spring surgery 7 October 2010 Sydney Children's Hospital Randwick
Springs removed 10 February 2011
Further surgery October 2011 Women's and Children's Hospital North Adelaide
Hi Nancy,
My daughter had surgery with Dr. Jimenez in January. She was bicoronal, but let me know if you have any questions about the surgery, recovery, or helmet therapy!
Kelli
Wife of Mike (right coronal, no surgery)
Proud mommy of:
Shannon Emily (cleft palate (Pierre Robin Sequence), no cranio) born 12/5/07
Lydia Lilianna (bicoronal cranio) born 10/22/09
Endoscopic strip craniectomy, Dr. Jimenez and Dr. Barone, San Antonio, TX on 1/14/10
Helmet Therapy 1/20/10 - 4-22-11
I'm glad you got a date so quickly! Only a week to go!
-Jenn
Mom of twins Georgie (plagio) and
Hunter (metopic) born on 5.25.10
and Shane (no cranio)
metopic surgery DONE on 12/9/10 at Cohen's Children's Hospital on Long Island
touch up surgery ETA: winter 2013 :(
Wow...that's quick! I hate to admit, but I'm kind of jealous.
Erin - Mommy to:
Braydon (7/23/2010) - Sagittal Craniosynostosis - Dr. Puccioni and Dr. Miller (01/04/2011)
We're on the other side!
bueltelmiracles.blogspot.com - New Post 01/05/2011
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