update on logan.
well last week we went into dallas to see dr.fearon. after it was all said and done, he believes Logan will be fine!!! we do have to go back when Logan is 10 months old just to see if there is any changes but dr fearon does not believe there will be a need for surgery since Logans case is so mild. My heart goes out to ALL of the families who go through this. Its a very hard thing to have to deal with. Good Luck to everyone and their sweet babies!! If anything changes will give an update!
What spectaculor news!!!!!!!!!!!
Heather
Nicholas - born 3/4/09. Sagittal Synostosis. Posterior CVR 9/15/09 with Dr. Fearon and Dr. Sacco - Medical City Dallas.
http://www.caringbridge.org/visit/NicholasNezich
http://www.onetruemedia.com/shared?p...3242&skin_id=0
Great news!! What a relief.
Erika- mommy to victoria-10 no cranio,vincent-7 no cranio,daniel-6 no cranio,destiny- 4 no cranio,mikey- 2 no cranio,andrew- 12-10-09 bi-coronal surgery 10-12-10, anthony-no cranio
That is cause for celebration!
Kari
Mom to:
Heather - 12 years old (no cranio)
Jason - 5 yrs old (metopic ridge, no trig., no helmet)
Robert - 1 yr (trigonocephaly due to metopic synostosis) - CVR, Oct 8, 2010 Dr. Fearon and Dr. Sacco
I´m so happy for you. I remember the relief when they told me Olivia was wait and see. At first it took some days to sink in before I believed them. I suppose I always saw Olivia´s forehead as much worse than it actually is. Our next appointment is in December and I´m quite sure they´ll send us away with a clear record. I look forward to positive updates.
Sorry, I just had to add, Peg, that new pic of you and Luke is simply heart melting.
KATY
Mummy to Benjamin, Theresa, Claudia and Olivia, mild metopic, wait and see
that is great news!
Mom to Noah (no cranio)
Fiona (Metopic):
Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips
What wonderful news!! Logan is a cutie...good luck and keep us posted on how he does!!
Kristin, Momma of two rambunctious cuties:
Lucy born 3/05 "failure to thrive"- negative percentile on growth chart for weight 3/06 to 3/08
Xander born 3/08 Left Lambdoid Synostosis and Chiari Malformation- Posterior CVR Surgery 2/09 w/ Dr Fearon and Dr Sacco at Medical City Hospital Dallas, TX (fought insurance and won in network gap exception) rant rant rant....
Fantastic news!
Wendy:
Mum to Rebecca born 8.1.10 - diagnosed sagittal cranio. surgery at Alder Hey on 14.1.11.
We've made it to the other side
Awesome news!!
Mom to Riana 9/19/05, Shane 7/5/07 (mild metopic cranio- no surgery required), Addison 6/16/12
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