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Thread: Bryson's surgery is almost here...

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    jolleytwins jolleytwins's Avatar
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    Default Bryson's surgery is almost here...

    I just wanted to let everyone know our sweet Bryson will be having surgery on Oct. 21st at Cook Children's in Fort Worth to correct metopic cranio and trigonecephally (sp). It has been a stressful journey and it is only getting more nerve racking as the date approaches. He will be under the care of plastic surgeon Dr. Obaid and neurosurgeon Dr. Donahue. Has anyone on here been under their care? We also would appreciate all of your thoughts and prayers. I know our little man will pull through just fine. We are ready to be on "the other side" .

    Also what should we expect during and the following days after surgery? Any input from an experienced parent would surely help calm our nerves. God Bless!
    Last edited by jolleytwins; 10-06-2010 at 04:06 PM.

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    Administrator *Jessica* is on a distinguished road *Jessica*'s Avatar
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    The count down is stressful, but you are almost there!

    In the 'Testing and Surgery' section there are some threads at the top (called stickeys, cause they stay at the very top) that have advice on what to bring to the hospital, etc. It was a really great resource that I read through before our surgery last year. TONS of tips, like to bring warm clothes (hospitals are freezing!), and to bring toys that feel, smell, or sound familiar to your little one. There is a good chance their eyes will swell shut and something familiar, is a real comfort to them. Also remember yourself. Rest when you can and bring things to keep you entertained when your LO is sleeping.

    Hugs momma! You are almost to the other side!!!
    Jessica
    Jeffrey James
    Metopic, Surgery June 2009, Vanderbilt

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    JoJo'sMom JoJo'sMom's Avatar
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    My son is three weeks post op for metopic and trig. The first night after surgery he was sleeping basically the whole time. Days 2-4 were rough with the swelling and closed eyes. When he started coming off the meds on day 4 he was definitely more aggravated but responded to us singing/talking/holding him. The first week home is a little rough because they are cranky and not sleeping well, but soon after they really do come back to their normal personality. It's quite amazing. Pack warm clothes, books that play music, clothes for the baby (zip up sleepers), and small blankets that smell like home. My son actually really enjoyed taking walks in one of the hospital"s strollers instead of laying in the bed or being held the whole time. I actually let him sleep overnight in it the one night we had to share a room when we were out of the picu. Good luck...it will be over before you know it and it will be successful :)

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    Best of luck with the surgery. Let us know how it goes! You're almost there!

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    Brendan' Mummy BrendansMummy is on a distinguished road BrendansMummy's Avatar
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    Best of luck, we will be thinking of you
    Lisa,
    Joshua
    6 years - Bilateral Talipes (club feet) surgical corrections at 9 weeks, 9 months and 3 years.
    Autism spectrum disorder

    Sophia
    4 years, dilated ureta causing frequent UTI's

    Brendan
    2 years - Metopic. FOA/CVR preformed March 25 2010 at The Sydney Children's hospital, Randwick.
    Dr. Jeremy Hunt & team

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    jolleytwins jolleytwins's Avatar
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    Thank you all for your thoughts. I think the hardest part will be seeing his little eyes swell shut. I will be sure to bring lots of farmiliar items from home to comfort him.

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