My son, Jeremy, had an anterior CVR with Dr. Fearon on Monday, and we got to go home earlier today! We are so happy to have this operation over with :). But I'm super stressed about his eyes and thought I'd try to get some more information.
Jeremy has severe glaucoma (high eye pressure). The problem is that we treat his eye pressure with drops, but his eyes are tightly swollen shut. He takes oral medicine too, but it's harsh stuff, and his bloodwork was coming back awful after surgery, so he has to stop the oral medicine for at least a week. His eye pressure may be high enough that if it is untreated, he'll go blind in a few days. Our ophthalmologist is giving us until Fri. morning with no meds, and then we have to pry his poor little painful eyes open for the drops.
We actually hope that the CVR relieved his eye pressure. Usually eye pressure and ICP aren't related, but Jeremy had a previous CVR, and his glaucoma went away for 4 months right after and came back about a month before we realized his ICP was up again. One of the main signs of high eye pressure is not eating. He's eating really poorly, and I know he did just have surgery two days ago, but I'm still freaking out.
Could you let me know when your child was able to open his/her eyes after surgery? Do we have a chance of having his eyes open by tomorrow? I feel sick thinking about touching his swollen lids, but I feel sicker thinking that he may go blind if I don't do anything soon.
P.S. Sorry I haven't been here lately or given any updates! The last couple weeks have been a whirlwind. It ended up that Jeremy's brain broke through the back of his skull last week because he needed the surgery so badly. Our local NS totally misdiagnosed Jeremy this summer...thank goodness for Dr. Fearon. You can add us to his fan club. Hopefully all will be smooth with Jeremy's treatment from here on out!