Same for Isaac - he sort of had multiple sutures that were fused and no sign of a syndrome. He continues to develop normally. He is now 21 months and heading right for the terrible two's.
Same for Isaac - he sort of had multiple sutures that were fused and no sign of a syndrome. He continues to develop normally. He is now 21 months and heading right for the terrible two's.
Marks 3 now. Its amazing how time flies. No sign of a syndrome. Mark hits every milestone. He has completely healed from the surgery. He still has very slight asymmetry in his eyes and forehead. But you really have to look for it.
The one thing I did notice is that Mark's grammar is pretty bad. He has a huge vocabulary, but doesnt seem to conjugate any verbs. He says things like "I eating fries".
I dont think this has anything to do with cranio, or even if its something to be concerned about, but a neighbour's girl that is the same age as Mark seems to have a better grasp on grammar than he does.
Hi there....I hope all is well with your family, I can't believe Mark is now 3! Children develop differently, don't compare Mark to the little girl next door....I did that with my son and nearly drove myself crazyYou said that he has a large vocabulary, that's very good. If you are concerned I would talk to his dr, but I'm sure everything is just fine.
Mom to Noah (no cranio)
Fiona (Metopic):
Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips
Thanks for sharing! It was beautiful!
Sagittal surgery - 02/26/2009
Second surgery suggested to correct a bump on the head and fill in soft spots.
Same here...multiple sutures, bi-coronal and saggital but no syndromes so far. Developing well with no complications. The geneticist seemed to think that technology will advance so much by the time she is ready to have children that there will be more answers then.
So we had Marks blood sent over to a Private clinic in the UK that specializes in Genetics for Cranio kids. Our geneticist at Sick Kids told us about him.
He found a new genetic anomaly that affects the development of cartilage. But its function is very limited to just bones and cartilage, so he thinks given Marks normal development in every other sphere, that his cranio is limited to only the sutures and nothing else.
Hi my little girl has bilateral lambdoid craniostynosis but she has no syndrome just a hell of a lot of other conditions that started from the craniostynosis. The lambdoid stenosis forced the back part of her brain out cerebellum through high intercranial pressure, that lead to a chari malformation, which then 2 years later proceeded to develop a tethered cord, and the high ICP left scarred brain tissue on the front cortex & back of the brain leading to the brain re wiring itself to cut out the damaged portions leading to a diagnosis of Autism. so No syndrome but a long bumpy road none the less :(
*** Chelsea *** bilateral lambdoid craniostynosis & chiari malformation*** posterior clavicle augmentation surgery*** July 05... August 07****Onwards & upwards****
That is a bumpy road for sure.
Mark has some speech difficulties (mispronunciations of some syllables), we aren't sure if this is due to cranio or not. We are going to a speech therapist. The strange thing is that Mark speaks three languages relatively fluently, english, french and hindi, he is also great with math.
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