multiple cranio - no syndrome

[MarksDada]

Often we hear as parents that multiple sutures means syndrome.

Mark had multiple closed suture - coronal and sagittal.

He is not syndromic, has turned 2 today, talks alot for his age, has a large vocabulary.

Runs around and plays with other kids.

http://www.youtube.com/watch?v=vnqgTELJk5c

here is a short video of mark

[MarksDada]

Please dont worry too much about your kids, they are more resilient and heal so much faster than you can ever imagine.

I know its easy for me to say all this now that we are so far on the other side.

But it does get easier.

[Shar]

You have a very beautiful family. The video was very touching and shows your daddy heart. I can tell you love your son very much!

Happy Birthday to Mark!!! He looks wonderful!

[BrendansMummy]

Thank you for posting :)

[Monica]

He looks gorgeous!

[Janet]

Hi Vijay!

Hope all is well with you and your family. I'm so happy that Mark is doing so well. Fiona is going to start kindergarten in 2 weeks, she will be 3 years post op on Sept 26th.

Thanks for posting your video.

[Katie]

Thank yo for the video and posting your support It's comforting for parents to hear that from someone who has been there.

[Katie]

Thank yo for the video and posting your support It's comforting for parents to hear that from someone who has been there.

[Didi's mum]

Hi there, my daughter also has multiple sutures fused - metopic and coronal and her genetic tests were all clear and no syndrome associated.

[Ava's Mommy]

Thanks Mark's Dada. My little girl has bilateral lambdoid sagittal synostosis and so far we can't find any syndromes either. She also has a split uvula - but again, we can't seem to determine a syndrome. Four genetic tests down and two to go...
We're hoping to have another baby but we're scared (of course).
Ava is 10 months old, starting to walk a bit, babbling like crazy and climbing the dog regularly!! Thank you. Your video made me cry (in a good and hope-filled way).