I haven't been on in a while, but I thought I'd post a quick update. We are almost 9 months post op and we've done 9 months of helmet therapy. Hard to believe it's been so long! We have an appt on July 1st with the NS and he's going to decide if she's done with the helmet. He's been telling us all along that she's progressed so well he thinks she'll be done. Our orthotist has also been telling us that her head looks great and we should be done soon. I was trying not to get my hopes up, but honestly my hopes are WAY UP. If they tell us we'll need the helmet longer I'll be fine with that, but it's gonna suck. Wish us luck!!!
I've attached a couple recent pics of her head without the helmet. She still has a tiny bit of bogging on the right eye. The left eye seems like it's worked itself out. It's not noticeable to anyone but me because I'm the ultimate head picker. Even my hubby has no clue what I'm talking about. I'm told by our orthotist that the bogging is the last part to work out and it usually takes care of itself after the helmet comes off.
Anyway, can anyone tell me if there is a way I can be notified whenever someone posts something new in the "Helmet Therapy" forum? I looked through my settings and couldn't figure it out. I want to help out my fellow helmet mamas and I have a feeling I'll be on here even less when she is not in her helmet anymore. If anyone can tell me if it's possible and how to do it that would be awesome.
Things I would like to pass on to new mamas about to go through helmet therapy:
- It's really not that bad after you, the baby, and your spouse get used to it. Sounds silly, but in time (it took us a month) you'll all get so used to it that it won't have a huge impact on every little thing.
- After a while you don't care that people are staring at you in public places. You'll learn cool ways to answer the question, "Why is your baby wearing a helmet?" Some of our favorite responses were, "Skydiving accident." "She's getting ready for her launch to the moon." "It's to make her more durable."
- The helmet really does work well and we've been VERY pleased with the results. The results were noticeable with each change we made to the helmet and we're very glad we did it.
- There are a couple advantages to having the helmet. The best one is when she started pulling herself up, cruising, and finally walking she fell about 100 times a day. The helmet was her saving grace on many many occasions. And when I'm trying to clean her nose or face and she's turning her head away , her helmet is much easier to grab and hold in place than her squishy head.
- By far my favorite part of the helmet was what we called "helmet time". It was the one hour a day she got to have the helmet off. During that hour me and my husband just played with the baby. She had our full attention and the three of us had so much fun together. If we weren't forced to have one hour of helmet free time each day we wouldn't have cut out that time for each other. It's now part of our daily routine and I really hope it doesn't change after the helmet is gone.
- BUT MOST IMPORTANTLY: Getting to know the other helmet moms on this site and posting experiences and questions is so therapeutic. There are amazing families on here and the support helped me immensely during our whole journey. PM me any time at all or you can just email me at firstname.lastname@example.org.