hope this helps someone?
Hi, When I was barely 18 yrs old, my son of 8 months old started showing signs on his forehead of a protrusion of bone. Within weeks, he was diagnosed as having Craniosynostosis and would be operated on. We had never heard of this, and our Neurosurgeon said he took our case to the States just beforehand to deliver a case study (ours was it). My son Ryan's skull was cut from ear to ear, over his skull, where they dropped the forehead skin to cut away 2cm of skull bone over his eyebrows, 2cm of bone down the centre of his forehead, and also 2cm of bone over the entire incision (ear to ear), they then placed back the skin, and left actually two loose bones on his forehead. There was no helmuts worn in those days, and after maybe 3 days in hospital, we went home. My son started walking shortly afterwards, having no symptoms whatsoever, either that they worked close to the brain or otherwise.
He is a healthy, handsome 30 year old man, with a Keloid scar from ear to ear on his head. He often shaves his head proudly to clearly show the scar, which is with him for life! If he one day goes bald, it will be something to show his grandchildren? When he was operated on, I truly believe this type of surgery was still relatively new, and as I have "stumbled" on to this website, I really wanted to offer encouragement and hope to all new parents that are going through possible turmoil. All cases are entirely different, and all children are different as well. I am now nearly 50 years old??(OMG)!, and to this day, I think that had I not guzzled too many Calsuba Calcium tablets in those pregnancy days, maybe his bones would not have progressed and developed to the point that his entire skull/sutures and soft spot closed up? I will never know, but I am very grateful that he is still a wonderful, healthy young man now. If I can get it right, I can try to post the pics of him when he was having his stitches out and how he looks now? If any one is keen, I will then try - good luck to all! Liz
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Liz!
I dont believe that! My frist pregnancy I was Die hard about taking my prenatal and extra calcium (as i do not like milk at all), sadly though with my second pregnancy I was not as good about taking my vitamins. He ended up being my cranio baby. I do still feel guilty about not being as good about not drinking pop and taking my vitamins but i cant do anything about it now, and both are healthy. Dont hold any guilt with yourself for that! God has a plan and for some reason us Cranio Moms have this in our cards! Anyways I'll step off my soap box! Welcome to CK though!!!!
Sophia and Erik
Cameryn Andress- 12-15-06--no cranio
Jaxon Ryan- 1-08-10-- Sagittal Cranio
