Has anyone else been sent by their peds to a neuorologist instead of a neurosurgeon? Because my ped did and thats a three hour drive? I would be pretty darn angry if it ends up being a wasted trip.
Has anyone else had to do this?
Has anyone else been sent by their peds to a neuorologist instead of a neurosurgeon? Because my ped did and thats a three hour drive? I would be pretty darn angry if it ends up being a wasted trip.
I hope you don't waste a trip hon! We were sent to see a neurosurgeon and plastic surgeon (specializing in craniofacial reconstruction) and it's at a children's hospital so they specialize in peds. Is there a children's hospital in NC or very near? I'm going to Denver and it's about 8 hours from where I'm at.
SAGITTAL SYNOSTOSIS DIAGNOSED: JUNE 4, 2007
CVR @ TCH DENVER: JULY 26, 2007[/FONT]
As far as I know, plastic surgeons and neurosurgeons work as a team to diagnose and treat cranio. We were never referred to a neurologist.
Cheryl (mom to Clara, born 11/5/02)
profound unilateral hearing loss
Saethre-Chotzen syndrome
Right coronal cranio-CVR/FOA 9/15/03; cranioplasty 4/5/05
ear tubes-6/30/04, 5/9/06
ptosis surgery-7/1/05, 8/13/10
strabismus surgery-10/11/05, 5/9/06
actually the hospital im going to is a childrens hospital. :( well its East Carolina University. But they have a pedatric center which is why I have to drive three hours to get there.
We were referred to the Cranio-facial clinic at Sick Kids hospital were we have seen a plastic-surgeon and a neuro-surgeon.
Mom to Noah (no cranio)
Fiona (Metopic):
Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips
well, im going to call and bother the drs on monday and explain to them that I cannot afford to pay for the gas and the days off work to travel 3 hours for nothing. :) im going to be the biggest pain the their butts that they ever encountered until something gets done.
That is probably the best approach, hopefully they can explain why the neurologist instead of the neurosurgeon if it wasnt a mistake.
:bouquet Kindest Regards
Racheal and Mark Tamehana
Parents to Beth -right lambdoid + coronal synostosis + cranio lacunae, Ethan, Simon , Seth , Daniel , Maia , Conor, Sharnae
http://www.geocities.com/mayashekhina/index.html
Shortly after Austin's birth, he was seen by a pediatric neurologist, because he was extracted by vacuum and they wanted to make sure there was no brain damage. The neurologist saw Austin 3 times and never once mentioned Craniosynostosis. He even said to give it time and Austin's head would round out.
The Pediatric PS and NS were the ones who diagnosed Austin.
-Heather
Mom to Michael - 10/30/94 - No Cranio
Austin - 7/7/05 - Right Coronal Craniosynostosis (Surgery at CHOC on 11/18/05)
Dillon - 7/11/07 - Perfect little round noggin
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