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Thread: Cranion Awareness On Facebook

  1. #11
    Leighasmom Leighasmom's Avatar
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    Funny you should say that ;-) some of us are going for tattoos but.....I also made it available on T-shirts ect http://www.cafepress.com/CranioArt/7142131
    Mommy of Austen 12/21/96: ADHD~normocephaly Leigha 7/22/00: Bicoronal Cranio~CVR with FOA May 2001~DOC band graduate Sept. 2001
    Fought insurance & won on 4th appeal~2nd reconstruction summer 2011 w/Dr. Fearon
    Colton 3/24/09 normocephaly
    OUR Story

  2. #12
    Brendan' Mummy BrendansMummy is on a distinguished road BrendansMummy's Avatar
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    Lovely stuff you have there!! I will definitely be visiting when i have spare money
    Lisa,
    Joshua
    6 years - Bilateral Talipes (club feet) surgical corrections at 9 weeks, 9 months and 3 years.
    Autism spectrum disorder

    Sophia
    4 years, dilated ureta causing frequent UTI's

    Brendan
    2 years - Metopic. FOA/CVR preformed March 25 2010 at The Sydney Children's hospital, Randwick.
    Dr. Jeremy Hunt & team

  3. #13
    Roman's Mom Roman's Mom's Avatar
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    Just read this old thread, and made the crainio awareness ribbon my facebook profile pic. ; ) I like it. Let's do it again!
    I also found where you can get nice crainio blankets for your baby (for free/donation) at: http://www.cappskids.org/BLANKETS-FOR-BABIES.html I ordered one for my son for his upcoming surgery. Check it out!
    Melanie

    Mommy to Evelyn, 5 yrs. (no cranio)
    and Roman, 2 years old (sagittal cranio)- open strip craniectomy with "barrel staves" on January 5th, 2011 with Dr.Mapstone at OU Medical.
    We are on the other side! : )

  4. #14
    Samantha's mommy sproutgirl is on a distinguished road sproutgirl's Avatar
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    Mel, I love the stuff on that website. If I come up with some extra money I"ll have to revisit it. By the way, are you the one who posted the video on Facebook? It was just beautiful, and I shared it on my page.

    Melanie, I just saw the blankets this afternoon and ordered one for our upcoming surgery as well. What a neat idea. Love it!
    Mindy
    Mommy to 3 beautiful girls
    T, 12/03 - no cranio
    R, 4/08 - no cranio
    Samantha, 12/09 - metopic cranio, ICP, and developmental delays
    had CVR November 2010 at Cook Children's Medical Center


    I love you, O LORD, my strength. The LORD is my rock, my fortress and my deliverer.


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