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Thread: Cranion Awareness On Facebook

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  1. #1
    donnamilliezac is just starting out donnamilliezac's Avatar
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    Default Cranion Awareness On Facebook

    Hey all

    mel designed a beautiful ribbon for Cranio awareness on Facebook, its on Sharon's page and I thought it might be a good idea if we wall make it out fb profile pic for the next 48hrs to help raise awareness im posting the link hope it works

    my fb name is donna millen if you want to add me and get the picture from me

    http://www.facebook.com/?ref=home#!/...6452553&ref=mf
    Donna xx

    Millie - 05/11/04
    Zac - 30/04/08 - metopic / trigoncephaly
    positional plagiocephaly
    Surgery performed on 27th August 09 by Dr Wall at JR Oxford

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    123aincol3 123aincol3's Avatar
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    Cool ribbon and great idea Donna. I've uploaded it as my pic. Fantastic for cranio awareness!
    Aine partner to Colin
    Mum to
    Conal 8
    Kelan 3
    Sheenagh 1 (Sagittal Synostosis)
    Had surgery 02 Mar 2009 in The Royal Belfast Hospital for Sick Children

    We are on the other side

  3. #3
    mrs j has a spectacular aura about mrs j has a spectacular aura about mrs j's Avatar
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    yep, good idea hun, it always takes me forever to try and figure out how to do this lol.xx




    Heather



    BRADLEY 5..... METOPIC CRANIO, cvr/foa performed on 14th February 2008, by Mr Wall at the John Radcliffe Hospital,Oxford.

    Kirsten 7 (kidney duplex,ureteroceole)
    Darren 12
    Marcus 16

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    hayley hayley's Avatar
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    Great idea x


    Hayley xxx

    Marky - 30 April 2006
    Metopic baby Op date 1st May 2008
    by Mr Johnson at Oxford

  5. #5
    Brandon's mommy Gretchen Gretchen's Avatar
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    Well, mel gave what i felt were pretty good instructions on how to "tag" yourself to the photo and then make it your profile pic HOWEVER I am so computer challanged I still cant figure it out. How do i do it!!!???
    Gretchen mommy to Andrew Charles 4/25/07, Brandon Danger (bicoronal synostosis) 7/12/09
    CVR/FOA done 2/5/10 - Dr. Scott Elton and Dr. Rodney Schmelzer of Banner Pediatric Spec.
    Cardons Childrens Center- Mesa, AZ
    www.crazylongtins.blogspot.com
    Hunter 9/9/99
    Brooke 11 6/6/98

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    tracy_girl05 is just starting out tracy_girl05's Avatar
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    ok I think I am the only person on th eplanet with out Facebook! lol I would love to see the ribbon
    Crystal Proud momma to-

    Hailey Lynn- 12/29/07, Left Coronal Cranio baby-surgery with Dr. Fearon 10/27/08

    WE ARE ON THE OTHER SIDE!!!!!!!!!

    http://www.caringbridge.org/visit/haileytracy


  7. #7
    Brendan' Mummy BrendansMummy is on a distinguished road BrendansMummy's Avatar
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    It keeps telling me that the content can not be found. Could someone please post the pic in here?
    Lisa,
    Joshua
    6 years - Bilateral Talipes (club feet) surgical corrections at 9 weeks, 9 months and 3 years.
    Autism spectrum disorder

    Sophia
    4 years, dilated ureta causing frequent UTI's

    Brendan
    2 years - Metopic. FOA/CVR preformed March 25 2010 at The Sydney Children's hospital, Randwick.
    Dr. Jeremy Hunt & team

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    Leighasmom Leighasmom's Avatar
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    Give me a min to log onto computer and I'll tag u guys to it if u are my friends. And I'll post it here. Several of us are emailing la ink and kat von d to see if we can do a tat and raise awareness at same time. <3
    Mommy of Austen 12/21/96: ADHD~normocephaly Leigha 7/22/00: Bicoronal Cranio~CVR with FOA May 2001~DOC band graduate Sept. 2001
    Fought insurance & won on 4th appeal~2nd reconstruction summer 2011 w/Dr. Fearon
    Colton 3/24/09 normocephaly
    OUR Story

  9. #9
    Leighasmom Leighasmom's Avatar
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    Here you go or its under my photo section
    Mommy of Austen 12/21/96: ADHD~normocephaly Leigha 7/22/00: Bicoronal Cranio~CVR with FOA May 2001~DOC band graduate Sept. 2001
    Fought insurance & won on 4th appeal~2nd reconstruction summer 2011 w/Dr. Fearon
    Colton 3/24/09 normocephaly
    OUR Story

  10. #10
    Brendan' Mummy BrendansMummy is on a distinguished road BrendansMummy's Avatar
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    That is beautiful! it would look great on a shirt.
    thanks for posting it
    Lisa,
    Joshua
    6 years - Bilateral Talipes (club feet) surgical corrections at 9 weeks, 9 months and 3 years.
    Autism spectrum disorder

    Sophia
    4 years, dilated ureta causing frequent UTI's

    Brendan
    2 years - Metopic. FOA/CVR preformed March 25 2010 at The Sydney Children's hospital, Randwick.
    Dr. Jeremy Hunt & team

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