How long did it take from the time your child was diagnosed until their surgery day? I'm trying to get a timeline in my head should Makayla need the surgery.
How long from diagnosis until surgery?
How long did it take from the time your child was diagnosed until their surgery day? I'm trying to get a timeline in my head should Makayla need the surgery.
Well Fiona was diagnosed at 4 months and had surgery at 10 months old....I had a long 6 months to wait, but that's when our surgeon likes to do the surgery.
Mom to Noah (no cranio)
Fiona (Metopic):
Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips
It depends on the age at diagnosis and the age your surgeon likes to do surgery. If a child is older when they are diagnosed, it can come up pretty fast. Or it can be a few months. My son was diagnosed when he was 10 days old and we waited a few months for surgery -- our surgeon wanted him to be big enough, but likes to do the surgery we had at around 4 months.
Kate
Mom of Lexi, 10/9/03, no cranio
and Cameron, 1/3/09, had pi procedure for sagittal cranio April 21, 2009 at CT Childrens Medical Center, Dr. Martin
My Gwendolyn was diagnosed at 2 months and our surgery will be when she's 10 months old (in July). Also in Gwen's case it's more about when the surgeon likes to do it, we were told she'd have better results and since she doesn't have cranial pressure it doesn't need to be right away.
I knew something was wrong at 2 months, officially diagnosed at 5.5 months (after 3 months of waiting) and will be having surgery at 8.5 months.
my son was diagnosed at 2 days old and had his surgery at 7 weeks old.
Mom to:
Kyara 4/29/2003-No cranio
Liliana 12/18/2006-No cranio
Malachi 1/08/2010 born with Sagittal synostosis
Diagnosed 1-09-2010
Surgery 3/01/2010
Strip surgery with barrel cuts and slight cranial remodel
We are on the other side!!
Andrew was suspected by his pedi at 2 months. The suspicion was confirmed about a month later. First opinion docs wanted to do surgery at 6 months. We chose our second opinion docs which did surgery at 10 months. Because we liked our second opinion docs better we basically had an 8 month wait.
Angi
http://www.carepages.com/carepages/loveforandrew
http://www.onetruemedia.com/shared?p...edium=text_url
http://www.craniokids.org/support/showthread.php?t=4637
Andrew - born 8/11/07 (Metopic, CVR surgery completed on 6/18/08 at U of M)
Cheyenne Rose - born 4/18/10 with a patent urachus. Surgery at William Beaumont Hospital in Royal Oak, MI on 4/19/10.
We knew pretty much a few days after Adrian was born that he had Metopic Cranio and that he needed surgery. Adrian was alslo born with an additional little thumb on his left hand.
A surgery date was booked within a month of Adrian's birth.
FOA/CVR was done when Adrian was 8 months old
Proud Mum of Bianca, Kayla & Adrian
ADRIAN JOHN
Born 23rd August, 2008 with severe Metopic Cranio(Trigoncephlay) and extra little thumb on his left hand
Surgery 28th April, 2009
Chase was diagnosed three weeks ago and we are tentatively scheduled for April 14th, he will be 3 months old
Cameron was diagnosed hours after birth and will have surgery next month at 4 1/2 months old for sagittal.
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Peyton Olivia 8-18-09
