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Thread: Sagittal Synostosis surgery on Tuesday

  1. 03-20-2010 10:22 PM #1
    macemansmom
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    Default Sagittal Synostosis surgery on Tuesday

    My son Mason was diagnosed with Sagittal synostosis about 3 weeks ago. He will be 7 months old next week and is going in to have surgery on Tuesday morning at Cornell. It has all been quite a lot to take in but also a relief to have it all happen so quickly. He is my first so you can imagine the fear and nerves the next 48 hours will bring. He is such a happy and strong guy I am sure he will pull through wonderfully. But there is always that little voice in my head worried about complications. I just pray that they give me the same happy little guy back. I am brand new to this so I'll check out the surgery board also but please let me know if anyone has suggestions on ways to calm these nerves of mine.
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  2. 03-20-2010 10:28 PM #2
    Perla
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    Hi!!

    Everything will work out fine on Tuesday!

    Is Mason having a Posterior CVR?
    That's what my son had done 3 weeks ago at 5 months old.

    We did not wait long either, only 4 weeks between diagnosis and surgery date.

    It is difficult to stay calm as a Mom, but I can tell you that it is amazing how quick these babies recover. Mason will be back to his old self before you know it.

    Keep us posted,

    Feel free to send me a private message if you have any questions, specially since my baby is also Sagittal and had the surgery so recently.

    Hugs,
    Perla Liriano
    Mom to:
    Mia - 10/25/05 - No Cranio
    Max - 9/17/09 - Sagittal Synostosis diagnosed on 1/27/10
    Posterior CVR - 2/26/10 at Childrens Hospital at Montefiore - Bronx, NY
    Dr. David.A Staffenberg (CFS)
    & Dr. R. Abbott (NS).


    Pre Op - 2 Weeks after surgery
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  3. 03-20-2010 10:36 PM #3
    Terry17
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    I know just how you feel, but like all the people on this site told us the babies really do good with the surgery. Our little guy did great and recovered quickly!!! My prayers are with you!!!
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  4. 03-21-2010 12:11 AM #4
    AJ's Mommy
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    Were here for you momma! It will all be ok! All your feelings are normal, weve all had them.
    Hang in there!!
    Hugs
    ~Shelby
    ~~Shelby~~

    AJ~Sagittal Craniosynostosis
    ~Surgery 10-6-2009 At Seattle Children's Hospital
    ~Dr. Ojemann and Dr. Gruss~

    Cranio Care Bears
    www.craniocarebears.org
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  5. 03-21-2010 03:24 AM #5
    joshmummy
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    Keep strong mummy, you will get through this and your sweet little one will too. Our babes are so strong with what they have to go through! The lead up is the worst bit, once you get to the hospital something takes her and you will feel alot more at ease. will be thinking about you on tuesday, keep us updated when you get the chance. cant wait to welcome you to the otherside xxx
    Heidi-wife to Chris,
    mummy to
    Amara 12yrs- no cranio
    Romany 8 yrs- no cranio
    Joshua 4 yrs- sagittal-surgery at Birminghams childrens hospital in 2007
    2nd opinion with Oxford feb 2011, recommended no surgery but wait and see
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  6. 03-21-2010 06:46 AM #6
    LisaG
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    Good luck to Mason hun, my son had surgery in Oct and has done amazing, they all do. cant wait tio see you on the other side x x x

    Lisa
    Mummy to gorgeous Liam Baxter-
    Calvarial remodelling to treat saggital cranio 6 Oct'09 at Birmingham childrens hospital!!
    We're on the other side!!!!!!!!!!
    Hes my tough trooper!!!
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  7. 03-21-2010 09:38 AM #7
    Sawyer's_Mom
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    Hi and welcome. I'm sorry to hear about your son and that you have to go through this journey. Good luck Tuesday, we will be thinking of little Mason. Many prayers going your way. Keep us posted!
    Amanda



    Mom to 3 boys
    Hayden - 1/8/05 - no cranio
    Mason - 3/15/07 - no cranio
    Sawyer - 9/15/09 - diagnosed as trigonocephaly secondary to metopic craniosynostosis 2/12/10
    Surgery 7/16/10 with Dr. Fearon & Dr. Sacco at Medical City Hospital in Dallas, TX.
    Loving life on the other side!!
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  8. 03-21-2010 09:58 AM #8
    desajair
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    Oh my gosh, that is alot to take in. My little guy was diagnosed at 8 months, but we're just getting ready for his surgery on April 7th.

    My heart and thoughts go out to you. Good luck with everything and I hope your baby's recovery goes quickly and smoothly.
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  9. 03-21-2010 05:12 PM #9
    Max's Mommy
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    Sorry for the diagnosis - hope that we can help get you through this.

    Amy
    Amy Galm
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  10. 03-22-2010 05:05 PM #10
    Amanda_H
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    Good luck with the surgery! I'm sure the view from the other side will be great! Let us know how you get on,
    Amanda
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