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Thread: Starting a cranio charity

  1. #1
    averysmom averysmom's Avatar
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    Default Starting a cranio charity

    Have any of you started a cranio charity in light of your child's diagnosis? I have always wanted to start a charity, but never knew what it should be for. Since my daughter's diagnosis, I have no doubt in my mind that this is the type of charity I was meant to start.
    Has anyone started there own? I have no idea how to start one....looking for any thoughts/ideas/resources.
    Sheila
    Wife to Jason
    Mom to:
    Kyler 5-27-07 ~ no cranio
    Avery 10-14-09 ~ right uni-coronal cranio, supraventricular tacchyacardia (svt), scoliosis, torticollis, ocular tumor

    1st Surgery April 20, 2010
    2nd surgery - TBD

    Cranio Angel Network for Craniosynostosis:
    www.cranioangelnetwork.com
    Providing flower headbands and do-rags for cranio kids of all ages.


    Follow Cranio Angels at:
    http://www.facebook.com/cranioangelnetwork

  2. #2
    sharon/ proud mom of 5 momof2withcranio momof2withcranio's Avatar
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    no idea but i love it. not to steal your idea but i would love to do the same.
    Mother to 5 beautiful children. My youngest 2 were born with Saggital. Jacob-surgery 6/9/03 Sean-surgery 4/7/05.
    Sean has partial epileptic seizures and some dental issues and sleep apnea (seans 6 yr craniversary)

  3. #3
    Kailan kailan kailan's Avatar
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    I'm thinking you would need to host some kind of event or something that people can connect with. Like others have done walks, or biking or something with activities for kids. solely to raise money from others and themselves and show up at the event. You'd have to have a well thought out plan of what to do with money, and advertise that. the money could be used for sending care packages to families that are going through the surgery and recovery. or costs that are involved after ins. is "done" with covering whatever they will cover. stuff like that, you could send some money to this site even, they have a donation space for it. The event may start out small but with word of mouth, calling around to certain places sending advertisements about it, it'll grow in time. Start small and be educational sharing your testimony about it. Invite churches to the event as well.

    These are just a few ideas. I don't know if this helps, but I figured I'd get your brain going. :)
    Kailan
    wife to Joshua

    mother to
    Isaiah- 6 yrs. old
    Sarah- died of SIDS at 3 months,10days
    Eve- 4 yrs old
    Teshura- almost 2 yrs old. - MSPI, dysphagia, and sagittal synostosis,
    sagittal craniectomy with biparietal remodeling surgery July 2, 2010-
    w/Dr. Menezes in Iowa City

    Psalm 61:2 "when my heart is overwhelmed, lead me to the Rock that is higher than I."


    www.sisteroflikeangels.blogspot.com

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