I am new here but I have been 'lurking' the past few weeks. Here is *the beginning* of our story:
My son, Samuel was born via urgent C-section on 2/7/10, due to breech presentation. My OB/GYN immediately suspected craniosynostosis and brought it to our attention later that day (after talking with the pediatrician). A head ultrasound was ordered to rule out hydrocephalus (it was negative). The rest of our hospital stay is such a blur. We cried, and prayed, and cried some more. It was truly the best and worst few days of our lives.
We are very blessed to have such a wonderful OB/GYN. I have always known that he is excellent, but now I am pretty convinced that he is a saint. When we left the hospital, we had already spoken to a geneticist and had an appointment set up with a neurosurgeon, all courtesy of our OB.
By the way, it appears that our son has saggital synostosis.
We see the neurosurgeon next week (March 2). We are anxiously awaiting that appointment and the NS's recommendations. I am sure this will be the first of many postings/updates. Any advice or words of encouragement are very much appreciated.