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Thread: finally able to breathe again

  1. 02-10-2010 01:29 PM #1
    *Alicia*
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    Mom to Anessa and Abram *Alicia* *Alicia*'s Avatar
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    Talking finally able to breathe again

    Abe is officially helmet free now! We have to f/u with the CFS in June and then not again until he's 2! The neuro wants to see him in a year! YAY!!!!!!!!!!!!!!!!

    Alicia

    Anessa Corinne - 1-11-08 (no cranio)

    Abram Alexander 6-20-09-fused sagittal suture - CVR 9/21/09 with Drs. Horswell and Mazagri

    We're on the other side!!!!!

    "How much of human life is lost in waiting"~Emerson

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  2. 02-10-2010 01:31 PM #2
    Gretchen
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    Yayyyy!!!!
    Gretchen mommy to Andrew Charles 4/25/07, Brandon Danger (bicoronal synostosis) 7/12/09
    CVR/FOA done 2/5/10 - Dr. Scott Elton and Dr. Rodney Schmelzer of Banner Pediatric Spec.
    Cardons Childrens Center- Mesa, AZ
    www.crazylongtins.blogspot.com
    Hunter 9/9/99
    Brooke 11 6/6/98
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  3. 02-10-2010 01:37 PM #3
    dannlark
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    We're on the other side!! dannlark is just starting out dannlark's Avatar
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    Wonderful news!!!!!!!! YAY!!!!
    Larkin
    Mom to 3 boys: Aidan 9/8/2000 Camden 7/29/2003 Ian 7/29/2007 - Upper end "Mild" metopic. Surgery 8/27/08, Dr. Fearon, Medical City Dallas. We're on the other side!!!
    http://www.caringbridge.org/visit/ianrodriguez

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  4. 02-10-2010 01:54 PM #4
    Avery's Mom
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    Excellent!
    Kelle
    Mom to Samuel Avery
    Born August 10, 2007
    Right Lambdoid Cranio
    Complete bilateral cleft lip and palate
    Surgery at CHOA April 14, 2009


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  5. 02-10-2010 02:38 PM #5
    Sophia's_mom
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    Yippee!!!
    Tessa - mom to Sophie and Ben
    Little Miss Sophie - 12/22/08 - Sagittal - Endo surgery 4/16/09 @ St. Louis Childrens
    Baby Boy Ben - 12/14/11 - No Cranio!
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  6. 02-10-2010 03:10 PM #6
    audra15
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    Fantastic news!!!!
    Beth
    Kyra Rose - born 5/25/09
    sagittal surgery -10/14/09 at CHOP
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  7. 02-10-2010 09:33 PM #7
    Perla
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    Sagittal Mom to Max Liriano Perla Perla's Avatar
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    Congrats!!!!
    Perla Liriano
    Mom to:
    Mia - 10/25/05 - No Cranio
    Max - 9/17/09 - Sagittal Synostosis diagnosed on 1/27/10
    Posterior CVR - 2/26/10 at Childrens Hospital at Montefiore - Bronx, NY
    Dr. David.A Staffenberg (CFS)
    & Dr. R. Abbott (NS).


    Pre Op - 2 Weeks after surgery
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