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Thread: Update on Abey

  1. 02-06-2010 03:15 PM #1
    *Alicia*
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    Default Update on Abey

    Hi gals! Just wanted to write a quick update. Abram is 4 1/2 months post op and has been wearing his helmet for 3 1/2 months. This week we have appointments with both the CFS and Neurosurgeon. I am sooooooooooo hoping they'll give us the green light to finally ditch the helmet. I really feel as if it is holding him back in so many ways. With it on, he just sits and plays with his toys. With it off he is all over the floor, rolling, scooting and crawling backwards. Several months ago the neuro told us he really didn't even need it, our orthotist said that the surgery was so successful that it's basically just for protection, so please please please keep everything crossed for us on Wednesday! I'm so tired of almost having my nose broke by just kissing my little man!!! Geesh!
    I also added a few new pics! check them out! :-)
    Last edited by *Alicia*; 02-06-2010 at 03:38 PM. Reason: adding pictures

    Alicia

    Anessa Corinne - 1-11-08 (no cranio)

    Abram Alexander 6-20-09-fused sagittal suture - CVR 9/21/09 with Drs. Horswell and Mazagri

    We're on the other side!!!!!

    "How much of human life is lost in waiting"~Emerson

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  2. 02-06-2010 05:00 PM #2
    Sophia's_mom
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    Fingers crossed for you on Wednesday. I know getting rid of the helmet was a GREAT day for us.
    Tessa - mom to Sophie and Ben
    Little Miss Sophie - 12/22/08 - Sagittal - Endo surgery 4/16/09 @ St. Louis Childrens
    Baby Boy Ben - 12/14/11 - No Cranio!
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  3. 02-06-2010 06:32 PM #3
    toria
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    Im crossing my fingers for you. good luck x
    toria

    mummy to Imogen 26-04-2007 no cranio
    mummy to Elijah 18-06-2009 saggital cranio.
    surgery performed on 17th november at Birmingham children's hospital.

    we are on the other side
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  4. 02-07-2010 12:42 AM #4
    Shar
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    Hoping it's Wednesday!!! My, he's getting so big! He was just a tiny newborn when you joined, now he's a cute chunky monkey!
    Shar
    Mom to H (11/2007 ~ born with a Metopic Ridge, no surgery needed)
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  5. 02-07-2010 03:24 AM #5
    joshmummy
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    Fingers crossed for you, what a little sweetie xxxxxxx
    Heidi-wife to Chris,
    mummy to
    Amara 12yrs- no cranio
    Romany 8 yrs- no cranio
    Joshua 4 yrs- sagittal-surgery at Birminghams childrens hospital in 2007
    2nd opinion with Oxford feb 2011, recommended no surgery but wait and see
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  6. 02-07-2010 03:33 PM #6
    Momof2Boys
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    Good luck on Wednesday!!!!
    Jamie

    Mom of 2 wonderful boys! ;)
    Wife to hubby that survived testicular cancer 2009
    Jacob - 6 years old
    Justin - 3 years old~ Right Lambdoid synostosis/
    Surgery 10/22/07 , sleep apnea, multiple food allergies, acid reflux, low muscle tone, pectus, asthma, and chiari malformation secondary to cranio.

    Faith, Hope and Love

    Justin's Story
    www.caringbridge.org/visit/justinjones
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