Hi new here!!
Hi my name is Annmarie and my DS has Bicoronal synostosis. He was born in March 2004 and had surgery in August 2005. He had a frontal orbital advancement. I thought I would come on here to offer any help and also for support myself too.
I am from England, any others from England on here?
I have some pictures if anyone would like to take a look. http://aolpictures.aol.co.uk/galleries/morrispies2
Thanks Annmarie xx
Welcome Annmarie! We would love any experienced advice! We have a few bicoronal moms on here and a few families from England also.
Jack is adorable. (as is his big sister!) Thanks for sharing the pictures. And again- WELCOME!
Jennifer
Mom to- Sarah(13), Reese(10), Emily (8.5) & Cody (3)
Emily diagnosed w/ Rt. Coronal Cranio corrected in '04 w/ Dr. Wehby in Portland, OR
Can't wait to get to know you and here your story.
Heather mommy to Miriam (03.24.2006) FOA and CVR on October 6, 2006 Left Eye strabismus surgery, Dec. 20, 2006. Right eye strabismus surgery, July 27, 2007. Both eye strabismus surgery March 29, 2008. Touch Up sugery done at Primary Children's in SLC, Utah 01/04/2011.
Hello Annmarie it Jacqui & Charlie from the CAPPS site! This site is also brilliant. Just read Jacks story, what an ordeal you went through with your litte man but he is absolutely gorgeous. See you in May x
Jacqui - mummy to Charlie, Metopic cranio & Harry (no cranio)
Surgery carried out on 6th Sep 2007
CVR/FOA at John Radcliffe Hospital Oxford
Surgeon - David Johnson
Charlie's Metopic Journey - www.craniokids.org/support/showthread.php?t=16222
Thanks Jacqui i stmbled accross this site so thought I would Join. You will see me in May and i can't wait. Woo hoo !!
Welcome! He is adorable!!we need all the support for each other we can get here!
Thanks for sharing!
Welcome Annmarie! It's so great to have parents who are on the other side join, it is reassuring to the parents new to the journey to see successful stories. Dillon was bicoronal and metopic, had his surgery in 2004. He'll be undergoing another, but we are not sure when. Once agian welcome! I'm off to see your web page...
Going to check out your pictures, take care.
Josette
Thanks Everyone, hope you all like the pictures?
If anyone need any advice I am more than willing in trying to help.
I am just annoyed that i did not find this site earlier.
Jack has had a rough ride so far so I am hoping he can stay out of the clear for a while.
I have added Jacks story so far on the stories page, I hope you find it interesting and not too much to take in lol.
I had forgotten to say he has had grommits put in ( ear tubes ) but this seems less important if you know what i mean?
Take care Annmarie xxx
Annmarie you have a gorgeous family :icon_mrgr so yes I enjoyed the pics, we love sharing pics here of our babies its like my second family :)
Josette
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