Hi my name is Annmarie and my DS has Bicoronal synostosis. He was born in March 2004 and had surgery in August 2005. He had a frontal orbital advancement. I thought I would come on here to offer any help and also for support myself too.
I am from England, any others from England on here?
I have some pictures if anyone would like to take a look. http://aolpictures.aol.co.uk/galleries/morrispies2
Thanks Annmarie xx