Hello, I am new to this forum. My son - 3 years old - was recently diagnosed with a sagittal (single suture) craniosynostosis. He doesn't have any recognizable development delays but does have a somewhat mis-shaped head and the ridge along the top of his skull. We don't meet with the surgeon for about a month. Of course, I've been researching on the internet in the meantime. As most information pertains to infant treatments and concerns, I am curious if there is anyone on the forum that has been through this with an older child and willing to share a bit about their experience.
Thanks for reading-
Proud and worried Mom of Luke