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Thread: Do you think they are in pain?

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    Natey's Momma
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    Default Do you think they are in pain?

    My grandfather asked me yesterday if I thought Nathan was in pain. My first thought was "No". But then I got to thinking that I really don't know. He hasn't had his surgery yet (still waiting for them to call us with the date) and he has sagittal synostosis. As I thought about it more, he doesn't like to lay on his back at all unless his head is turned or if he is laying over my legs and his head is dangling. Maybe his head does hurt? Maybe it is just uncomfortable since he has such a long head? What are your thoughts?

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    angeleka is just starting out angeleka's Avatar
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    Honestly, do I think there is a possibility that they are uncomfortable at times... maybe. I do not think they are in pain though. I think we would know it. I mean I think there would be unexplained crying, grabbing, pounding at the head... something to show us that something hurts. I know they are so young and can't show us everything, but I knew that there was something was wrong before we found out Andrew had reflux. I knew because of his cries and irritability. I did not know what it was, but I knew he was hurting somewhere. I think it would be the same with head pain.
    I am no expert, but it is how I see it. Maybe it is how I need to see it, but whatever the reason, it is what I choose to believe.... what I have to believe!

    Angi


    http://www.carepages.com/carepages/loveforandrew


    http://www.onetruemedia.com/shared?p...edium=text_url


    http://www.craniokids.org/support/showthread.php?t=4637

    Andrew - born 8/11/07 (Metopic, CVR surgery completed on 6/18/08 at U of M)

    Cheyenne Rose - born 4/18/10 with a patent urachus. Surgery at William Beaumont Hospital in Royal Oak, MI on 4/19/10.


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    Natey's Momma
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    I think you are right too. He doesn't seem in pain, but it just wasn't something I thought to ask the docs. I do think he is uncomfortable though. Thanks for the input!

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    Holly is just starting out Holly's Avatar
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    Probably not pain but diffently can be uncomfortable in certain positions. I remember when Tyler was little and when he was in his infant seat he was not happy unless his head was to the side.
    Holly~ wife to Trevor mommy to Tyler and Jakob
    Tyler born 5~23~05 surgery for sagittal cranio 11~17~05
    Jakob born 3~15~07 surgery for sagittal w/slight metopic 9~27~07. Also Jakobs aortic valve on his heart is bicuspid.
    Emmaleigh born 8-13-11

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    Haydens_Mommy1122 is just starting out Haydens_Mommy1122's Avatar
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    I also agree about them being uncomfortable. I believe Hayden got torticollis because he had to have his neck shifted a certain way in order to feel comfortable.
    Tina

    Mommy of 2 wonderful kids
    Alyssa 12-19-99 no cranio
    Hayden 11-22-07 left coronal synostosis
    Torticollis
    Endoscopic surgery 12-14-2007
    Cvr/foa 10-17-2008

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    Registered User Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet Test Rep Janet's Avatar
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    Fiona rubbed her forehead a lot before surgery....she would dig it into my shoulder, the side of the couch, anything.....she didn't do it post surgery, maybe a coincidence....but I'll never know.
    Mom to Noah (no cranio)
    Fiona (Metopic):
    Surgery #1 CVR/FOA 9-26-07 (age 10 months) Sick kids in Toronto with Dr. Phillips (PS) Dr Kulkarni (NS)
    Surgery #2 Cyst removed over left eye 9/08 Dr. Phillips (PS)
    Surgery #3 Cranioplasty 10-18-11 (almost 5 years old) for soft spots filled in with titanium plates/peek implant from bone resorption and scar revision. Dr. Phillips


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    Avery's Mom Avery's Mom's Avatar
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    Quote Originally Posted by Janet View Post
    Fiona rubbed her forehead a lot before surgery....she would dig it into my shoulder, the side of the couch, anything.....she didn't do it post surgery, maybe a coincidence....but I'll never know.

    Same here.... Avery would also hit his forehead sometimes.....but I think it is more of a discomfort than pain....otherwise he would have been more vocal about it.
    Kelle
    Mom to Samuel Avery
    Born August 10, 2007
    Right Lambdoid Cranio
    Complete bilateral cleft lip and palate
    Surgery at CHOA April 14, 2009



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    Sophia's_mom is on a distinguished road Sophia's_mom's Avatar
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    I totally agree on the uncomfortable thing. Sophie was so bossy in the back that she couldn't lay on her back without truning her head, she also never slept thru the night. After surgery she has sleeps like a champ, I'll never know if it's related, but I can't help but think it is.
    Tessa - mom to Sophie and Ben
    Little Miss Sophie - 12/22/08 - Sagittal - Endo surgery 4/16/09 @ St. Louis Childrens
    Baby Boy Ben - 12/14/11 - No Cranio!

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    Nezzy will become famous soon enough Nezzy's Avatar
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    I don't think they are in pain. I know Nicholas also never laid with his head straight back, but that is because with the narrowing of his head and the occipitul bump, he couldn't.
    Heather
    Nicholas - born 3/4/09. Sagittal Synostosis. Posterior CVR 9/15/09 with Dr. Fearon and Dr. Sacco - Medical City Dallas.
    http://www.caringbridge.org/visit/NicholasNezich
    http://www.onetruemedia.com/shared?p...3242&skin_id=0

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    Nonie Nonie's Avatar
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    Noah is a very fussy baby and his cry sounds like he's in pain but now that we know he has reflux that could be alot of it. When he is the worst though he will often rub his eyes with his fists till his skin is red and looks sore. I don't know if his eyes hurt from icp or maybe he has allergies too. He often has very glassy eyes so I tend to think allergies. Its so hard to sort it all out.
    Noah's Nonie

    Noah 09-16-2009 : bicoronal ridging but no Cranio, hypertonia(high muscle tone) and reflux .


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