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    JillysMama is just starting out JillysMama's Avatar
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    Default Has anyone had this problem?

    When we do our 1 hour of helmet time a day my little girl pulls her hair out! It's crazy. As soon as we take off the helmet she starts pulling at her hair and scratching her nails into her head. I quickly put her in the bath to distract her, but when I get her out of the bath she continues to do it. I'm thinking her head might itch, but after the bath I thought it might get better. By the end of the hour her poor scalp is all red with scratch marks and her hair is coming out.
    Jean

    Mama to Jillian Alexis
    Born on 6/29/09
    Diagnosed with Sagittal Craniosynostosis 9/14/09
    Endoscopic surgery 9/28/09
    Started helmet therapy 10/7/09

    We are on the other side!

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    Sophia's_mom is on a distinguished road Sophia's_mom's Avatar
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    Sophie did (and sometimes still does) the same thing. Usually she'll only do this on days that have been really hot or she has sweated more than usual. I think her head is just itchy when it happens. I usually take the helmet off and wash her head then I'll comb her hair for a while, she likes that a lot as it gets some of those itchy shots for her.
    I have noticed that she has some dry spots on her scalp that have been flaking off sort of like dandruf (Sp?). I don't know what's causing this but we have an ortho appt next Tuesday so I'll ask about it then.
    Tessa - mom to Sophie and Ben
    Little Miss Sophie - 12/22/08 - Sagittal - Endo surgery 4/16/09 @ St. Louis Childrens
    Baby Boy Ben - 12/14/11 - No Cranio!

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    JillysMama is just starting out JillysMama's Avatar
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    Thanks for the reply! :) Let me know what they say about her dry spots. I feel like we're pretty close to having the same thing happen to us. I'm thinking their skin is pretty susceptible to fungal infections from the moisture. But I wonder if the kiddos are too young for anti-fungal shampoos. They absorb everything in their skin so easily. BTW, congrats on only having a month and change left of therapy. I wish I was in your shoes. Sophia is such a cutie pie and her head looks great!
    Jean

    Mama to Jillian Alexis
    Born on 6/29/09
    Diagnosed with Sagittal Craniosynostosis 9/14/09
    Endoscopic surgery 9/28/09
    Started helmet therapy 10/7/09

    We are on the other side!

  4. #4
    Sophia's_mom is on a distinguished road Sophia's_mom's Avatar
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    I picked up some shampoo for cradle cap this weekend and used it once and it worked like a charm on her dry scalp. I had forgotten about cradle cap since it usually happens when they are younger, but I'm pretty convinced that was her problem. Her scalp is nice and clear now. I also got some new shampoo that I'm going to switch her to, I was just using baby wash for her whole body but I'm going to try the shampoo for her head and see it that cuts down on the itchy-ness. I'll let you know how that goes.
    Tessa - mom to Sophie and Ben
    Little Miss Sophie - 12/22/08 - Sagittal - Endo surgery 4/16/09 @ St. Louis Childrens
    Baby Boy Ben - 12/14/11 - No Cranio!

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    Avery's Mom Avery's Mom's Avatar
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    Quote Originally Posted by Sophia's_mom View Post
    I picked up some shampoo for cradle cap this weekend and used it once and it worked like a charm on her dry scalp. I had forgotten about cradle cap since it usually happens when they are younger, but I'm pretty convinced that was her problem. Her scalp is nice and clear now. I also got some new shampoo that I'm going to switch her to, I was just using baby wash for her whole body but I'm going to try the shampoo for her head and see it that cuts down on the itchy-ness. I'll let you know how that goes.
    Avery had cradle cap come back after his cranio surgery....wonder why?
    Kelle
    Mom to Samuel Avery
    Born August 10, 2007
    Right Lambdoid Cranio
    Complete bilateral cleft lip and palate
    Surgery at CHOA April 14, 2009



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    Sophia's_mom is on a distinguished road Sophia's_mom's Avatar
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    I think Sophie did too but it went away quickly after the surgery. Now that I know what it is I'm surprised she hasn't had it more often being stuck in that helmet all the time.
    Tessa - mom to Sophie and Ben
    Little Miss Sophie - 12/22/08 - Sagittal - Endo surgery 4/16/09 @ St. Louis Childrens
    Baby Boy Ben - 12/14/11 - No Cranio!

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    Leighasmom Leighasmom's Avatar
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    Leigha had the same thing and yep the cradle cap shampoo did the trick. I bet their little heads tingle a little without that helmet. Now a bit of funny advice...when you're kids graduate beware of head bumps...Leigha didn't realize her head wasn't so indestructable anymore and would throw herself on the floor hard or bumb a chair and wow no helmet that hurt...screaming from her and mommy worrying she was going to shift her skull or something from surgery..lol.
    Mommy of Austen 12/21/96: ADHD~normocephaly Leigha 7/22/00: Bicoronal Cranio~CVR with FOA May 2001~DOC band graduate Sept. 2001
    Fought insurance & won on 4th appeal~2nd reconstruction summer 2011 w/Dr. Fearon
    Colton 3/24/09 normocephaly
    OUR Story

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