Zachary
Even though you have already "met" a few of us around here, I just wanted to welcome you to the site. Until my son was born with cranio and I found this site, I felt very alone. Suddenly, I found many caring people who could relate in some way. So many questions have been answered, too. I hope we can all do the same for you!
Cindy
*Skull bone removal surgery in summer of '77 for right unicoronal*
Mommy to Simon
*CVR w/ FOA surgery on June 29, 2005 for bicoronal*
*CVR with bone graft and bone paste surgery on July 15, 2009 for bicoronal and defects*
*Bone grafts and titanium plates on June 27, 2012 for defects*
Soul Mate to Chris
See our cranio journey at
https://sites.google.com/site/scofieldfamilycranio/ AND http://craniomommynbaby.blogspot.com
Welcome Zachary :-)
Cheryl (mom to Clara, born 11/5/02)
profound unilateral hearing loss
Saethre-Chotzen syndrome
Right coronal cranio-CVR/FOA 9/15/03; cranioplasty 4/5/05
ear tubes-6/30/04, 5/9/06
ptosis surgery-7/1/05, 8/13/10
strabismus surgery-10/11/05, 5/9/06
Hi Zachary ! Welcome to our dialogue of cranio kids. My son is a cranio kid, now 23. We are finding out so much too. Love your attitude.
Mom To Many,
Mom & Grandmom to Sagittal Craniosynostosis Angel Babies
Heather mommy to Miriam (03.24.2006) FOA and CVR on October 6, 2006 Left Eye strabismus surgery, Dec. 20, 2006. Right eye strabismus surgery, July 27, 2007. Both eye strabismus surgery March 29, 2008. Touch Up sugery done at Primary Children's in SLC, Utah 01/04/2011.
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