How did you find Cranio Kids?

[Katie]

Tell us a little about how you found us!

[LyndeidrasMom]

WOW, that's confusing... it took me forever to figure out how to post something..LOL!

I'm not new, I've just not been posting in a long time. I changed my user name... I think I used jazzysangels before?? not sure. My name is Sabrina Pittman and I have a 12 year old daughter named Lyndeidra who was born with Craniosynostosis! She's beautiful, a straight A student, was moved from 5th grade up to 7th this year based on her grades and abilities. She's a cheerleader for Cheer America, she's on level 6.... she also cheers for her middle school team this year!! She's a model (modeled for GAP, Limited TOO, Childrens Place, Old Navy and a few other places here locally), actress (she did a commercial for Chef Boyardee 2 summers ago), and a WONDERFUL young lady that her daddy and I are VERY proud of. She attends church regularly, she is a member of our church's AWANA group. She is a member of Duke University's TIP program for talented and gifted youth. She is highly thought of by community members as well as officials in this town. She's a very bright child and her dream is to become a Marine Biologist when she graduates college!
She has a 6 year old brother, and a 4 year old sister with whom she is very close to.
I praise GOD every day that HE allowed her to survive her surgery when she was 4 months old, and is what she is today.
She's beautiful inside and out!

[Jennifer]

Hi again Sabrina! I believe I remember seeing pictures of your daughter long ago (when the site orginally started maybe?). I would love to see pics of her again. It's great to here stories from older cranio babies!! What type of cranio did she have?

[Jen mo3]

Hi, Love the new site! I am a returning member, changed my user name. Haven't been on in a few months. Been very busy with 3 boys! I have a son Jerry who is almost 7 who was born with Sagital Synostosis. Has Saethre-Chotzen Syndrome. 3 days before Christmas our Plastic Surgeon called to tell us the results of our 2 year olds CT scan. He has officially been diagnosed with Sagital Synostosis. Quite a shock for us. She referred us to an Opthomologist and also to our 7 year olds Neuro Surgeon. Now Thursday we will meet with her again to discuss what we are going to do. Our oldest had the Craniosynostosis surgery at 11 months, ran into some complications and required a shunt - our worst nightmare for our youngest!!! I will update when I find out what the plan is.

[Jennifer]

Welcome back to the site then! So sorry that you have to go through the whole cranio thing again. Please keep us up to date and we hope to here more from you!

[snickers9246]

Just checking something

[snickers9246]

hmmmmmmmmmm didn't work.

[ExpatJen]

With so many Jennifers out there I thought I would distinguish myself - I'm on as ExpatJen but will still sign posts as Jennifer C.

The new site is great - Oh, and if it is of interest, I "googled" cranio. and that's how I found the old site. I also went to Yahoo groups and looked for groups dealing with Cranio. and plagio, and found several. At that time, Audrey hadn't been correctly diagnosed so I thought she had positional plagio. (she has left-coronal cranio.)- oh well, but at least I got closer to a correct diagnosis than 4 years of different doctors telling me her head would "round out". Actually, if it weren't for this site and the others I would never have thought to ask about plagio., which ultimately led us to the CFS and the correct diagnosis. I only regret it took me so long!

Thanks for all your help!

Jennifer C.

[plukids]

Hello all! I found craniokids in a post on cappskids from Tracey! I love the new site! It looks great I am still manuevering around a bit trying to figure things out!

[craniomommynbaby]

I found this site during one of my first searches on MSN shortly after Simon was officially diagnosed. I had done searches in the past and had never turned up good information. This time, I finally found a place where I do not feel alone.