New here but not to craniosynotosis
Hi, my name is Nicola an I was born with Chotzen syndrome (as was my mum) and we think my daughter may have it too and we are waiting for our appointment with a consultant to have it confirmed and for us to take the next step.
I needed surgery as a baby and follow up check ups untill I was about 10.
Anyway I'm 22 years old with a 6 week old daughter (who seems to think I'm a very good bed atm lol) so on maternity leave atm but am normally a full time nursery nurse.
ummm yeah thats about it lol
hi welcome to CK and congrats on your daughters birth. sorry you are having to go through all this but i'll keep my fingers crossed for u.
Donna xx
Millie - 05/11/04
Zac - 30/04/08 - metopic / trigoncephaly
positional plagiocephaly
Surgery performed on 27th August 09 by Dr Wall at JR Oxford
Hi Nicola and welcome to ck, congrats on your daughter. Sorry you are having this worry, hopefully you wont be waiting too long for your appointment, keep us informed.
Heather
BRADLEY 5..... METOPIC CRANIO, cvr/foa performed on 14th February 2008, by Mr Wall at the John Radcliffe Hospital,Oxford.
Kirsten 7 (kidney duplex,ureteroceole)
Darren 12
Marcus 16
oops, i forgot to ask Nicola, what type of cranio did you have, is this a concern with your daughter as well.xx
Heather
BRADLEY 5..... METOPIC CRANIO, cvr/foa performed on 14th February 2008, by Mr Wall at the John Radcliffe Hospital,Oxford.
Kirsten 7 (kidney duplex,ureteroceole)
Darren 12
Marcus 16
to the site. This is a great place for support and advice.
Kelle
Mom to Samuel Avery
Born August 10, 2007
Right Lambdoid Cranio
Complete bilateral cleft lip and palate
Surgery at CHOA April 14, 2009
Welcome to Cranio Kids! We have several other cranio adults on here I hope you can get to know. Congratulations on the birth of your baby!
Welcoem to CK! and congrats on your new addition! I am so glad that you have found us- your story will help so many other new mommies. Cant wait to get to know you !
Crystal Proud momma to-
Hailey Lynn- 12/29/07, Left Coronal Cranio baby-surgery with Dr. Fearon 10/27/08
WE ARE ON THE OTHER SIDE!!!!!!!!!
http://www.caringbridge.org/visit/haileytracy
Welcome to CranioKids Nicola & congratulations on the birth of your new daughter. You have certainly found a wonderful site here. Looking forward to getting to know you x
Jacqui - mummy to Charlie, Metopic cranio & Harry (no cranio)
Surgery carried out on 6th Sep 2007
CVR/FOA at John Radcliffe Hospital Oxford
Surgeon - David Johnson
Charlie's Metopic Journey - www.craniokids.org/support/showthread.php?t=16222
Just wanted to say hello and welcome you to this site x
Hayley xxx
Marky - 30 April 2006
Metopic baby Op date 1st May 2008
by Mr Johnson at Oxford
Welcome to CK Nicola and congrats on your baby girl. You have found a great site here for support and answers to all sorts of questions. Good luck at your appointment, and be sure to keep us posted.
Tessa - mom to Sophie and Ben
Little Miss Sophie - 12/22/08 - Sagittal - Endo surgery 4/16/09 @ St. Louis Childrens
Baby Boy Ben - 12/14/11 - No Cranio!
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