does anyone get fed up with..

[joshuasmummy]

mainly family in my case saying i dont think josh head looks as bad as it did a couple me weeks ago. what a silly thing to say. as if it is just going to get better on its own and all of a sudden. why do people say things like that. i could shout and scream at them for saying such stupid things. they know nothing about craniosynostosis so shouldnt say anything. arghh! anyone else have people say that too them or is it just my lot. Sorry to rant but they all drive me crazy. think i just get cross because they are not understanding what is involved with cranio, but suppose thats not their fault. x

[craniomommynbaby]

I haven't gotten those sorts of comments, but I am getting angry over some folks having a lack of consideration for the stress we are under. Yes, we want to try to live life as usual for now, but we do not want people adding to our stress or changing major family trip plans without our input. We have planned the surgery this summer around a trip to spread my MIL's ashes, and now there is talk of postponing the trip because some family members cannot afford it. They cannot afford it because they sit on their asses and live off of FIL without seriously trying to get jobs.

[*jules*]

aww Heidi. Sorry you are dealing with the ignorance of family. I have been luck and have not had to deal with that as of yet. However, I would guess they are probably only trying to "help" the situation and don't realize that we just need acknowledgement that...YES, his head doesn't look right (or something). Hang in there. Perhaps letting them know how you feel keep them from repeating those type of comments :)

[paynesmom]

I am hearing the same thing from in-laws. Then they want me to agree with them...adding "don't you think it looks better?" It irritated me the other day and I wanted SO bad to say "you're right. Let me go cancel that appointment with the DOCTOR, then."

I take it as them saying that I have created this crisis.

[joshuasmummy]

its not just my lot then. its soooo frustrating. its as though they dont want to admit there is a problem. doesnt help us mummies and daddies though.

[hayley]

I had the same thing with my ex inlaws (thankfully now ex) before Marky had his surgery even tho they didn't even see him that much i also think alot of people thought it was an attention thing AS IF YOU'D PUT YOUR CHILD THROUGH THAT FOR ATTENTION saying there was nothing wrong with the way he looked, they obviously overlooked the triangular forehead.

[charliesmummy]

Sometimes i think people just dont know what to say for the best & by saying positive things they think that they are helping or trying in some way to make you feel a bit better. We had the same comments, even to the point of saying that they didnt see anything wrong at all with Charlies head at all but that only made me feel worse as though i was puting him through this huge op for no reason.
Hang in there Heidi, your doing an amazing job for little Josh & were all right behind you every step of the way x

[dannlark]

(((HUGS))) YES!!! I'm sorry you're dealing with this too...grrrr..... I can't believe my MIL said to me last night, after EVERYTHING we've been through with Ian, "Ian really wasn't that bad, only YOU could tell he had problem, everyone else thought he looked fine." WTF?!?!?!?! I nearly socked her one!!! I couldn't even talk, I was so dumb founded!!! Those are the comments that cut deep... Why can stupid people just keep their stupid mouths shut!!!!!

Hang in there, Mommy, you know you're doing right by your son. (((HUGS)))

[joshuasmummy]

hi girls, everything you have all said sounds just like the comments i get. things like, they (surgeons) should leave him alone he looks fine. i get fed up with saying look at josh head from birds eye view then tell me he looks fine. arghh, annoying. its only my best friend that tells me the truth and seems to be on the same wave length as me. x

[mrs j]

i think people just dont understand at all unless they have been down this road themselves. My family was very supportive, although there were a few comments that made my blood boil, i found it hard talking to friends and outsiders about it, sometimes i felt like they thought i was butchering my son for nothing i mean wth, come on, nobody is gonna put their child through any type of surgery if they didnt need it, ugggggh.

Hang in there Heidi, bite your tongue and lean on your friend and us.xxxx