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Thread: Surgery in 3 days!

  1. #1
    JacksMama
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    Default Surgery in 3 days!

    Hi everyone! I have been reading all the posts and getting very teary. My baby boy Jack was born 1/20/09 and diagnosed with sagittal cranio on day 2. We met with the neurosurgeon and craniofacial surgeon when Jack was 2 weeks old. I have been waiting and waiting for the surgery, and now that it is 3 days away (june 3rd), I am getting so scared!

    It helps to read all the great encouraging stories on this site though.

  2. #2
    Safely on the other side Mother of boys is just starting out Mother of boys's Avatar
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    Welcome to CK! That is great that he was diagnosed so early. Many wait months and years to get a proper diagnosis. Waiting for surgery day was torture sometimes. It is completely normal to be scared right now. When you think of what they have to go through, it is scary. Thankfully cranio is fixable and the kids do fantastic. It is amazing how well they do and how quickly they bounce back. My son was sagittal also and had surgery back in October shortly before he turned 5 months old. Do you have any questions? I've added his name to my calendar so that I remember to pray for you guys on that day. Let us know if there is any way we can help. Hang in there. You are almost there.

    Take care.
    Pam


    Kepler 6/12/06-no cranio
    Keeson 5/13/08-saggital, 10/3/08-CVR surgery-Dr. Fearon and Dr. Price


    http://www.caringbridge.org/visit/keesonentz

    Keeson's surgery and recovery photos
    http://www.craniokids.org/support/sh...9825#post79825

  3. #3
    Universal healthCARE now! AllyCat is just starting out AllyCat's Avatar
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    Hugs to you Momma! Your little one will do just great. It's really scary and most of us have had some intense mix of "I just want this over with" and "I'm utterly terrified". He'll do great. You are so lucky you had a diagnosis so early. Most of us had to fight to get anyone to listen.

    What type of surgery will they do (CVR/FOA, strip, or???). Where will the surgery be done? I'm not sure we have any MN parents here right now. Please keep us posted how things are going for you and feel free to ask lots of questions! Read the stickies in the testing forum on what to ask, what to pack, what do while you are there. It all really helps. There are also a number of posts/threads on breastfeeding before and after surgery if that is a concern for you.

    Ask away and thanks for posting. We will all be sending prayers and thoughts your way in 3 days! (Tuesday?)

    Welcome!
    Allison

    Mommy to:
    Matthew (7) No cranio
    Rohan (5) Left coronal Surgery 2008

    http://www.caringbridge.org/visit/rohansorg

  4. #4
    Marucs's Mommy marcus's mommy is just starting out marcus's mommy's Avatar
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    I will be praying for Jack tomorrow. Let us know how everything goes :)
    BIG HUG!
    Mommy to Marcus
    Born 06/23/08 w/ Right coronal cranio
    CVR/FOA 03/10/09 at All Children's St. Pete, Fl

    ** We are on the other side**

  5. #5
    We're on the other side!! dannlark is just starting out dannlark's Avatar
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    Lots of prayers for you tomorrow. Hang in there, you've almost made it!!! (((HUGS)))
    Larkin
    Mom to 3 boys: Aidan 9/8/2000 Camden 7/29/2003 Ian 7/29/2007 - Upper end "Mild" metopic. Surgery 8/27/08, Dr. Fearon, Medical City Dallas. We're on the other side!!!
    http://www.caringbridge.org/visit/ianrodriguez


  6. #6
    Sophia's_mom is on a distinguished road Sophia's_mom's Avatar
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    Hi and welcome to CK. I'm sorry I missed this post and didn't see it until today. Good luck tomorrow! I'll be praying for you and Jack. I know it's scary, but Jack will do great and he'll bounce back to himself so quickly. Keep us posted tomorrow if you can.
    Tessa - mom to Sophie and Ben
    Little Miss Sophie - 12/22/08 - Sagittal - Endo surgery 4/16/09 @ St. Louis Childrens
    Baby Boy Ben - 12/14/11 - No Cranio!

  7. #7
    charliesmummy will become famous soon enough charliesmummy's Avatar
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    Welcome to CK & good luck for Jacks surgery tomorrow. He will simply amaze you im sure of that, it's so much harder on us parents. Hang in there sweetie & please let us know how he gets on x
    Jacqui - mummy to Charlie, Metopic cranio & Harry (no cranio)

    Surgery carried out on 6th Sep 2007
    CVR/FOA at John Radcliffe Hospital Oxford
    Surgeon - David Johnson

    Charlie's Metopic Journey - www.craniokids.org/support/showthread.php?t=16222

  8. #8
    Administrator *Jessica* is on a distinguished road *Jessica*'s Avatar
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    Hang in there Momma! Tomorrow you will be on the other side!!!! Keep us posted when you get a chance!!! Best wishes Jack!
    Jessica
    Jeffrey James
    Metopic, Surgery June 2009, Vanderbilt

  9. #9
    hayley hayley's Avatar
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    Hey just to let you know i'll be thinking of you tomorrow i hope all goes as well as can be expected xxx


    Hayley xxx

    Marky - 30 April 2006
    Metopic baby Op date 1st May 2008
    by Mr Johnson at Oxford

  10. #10
    Momof2Boys is just starting out Momof2Boys's Avatar
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    Lots of huggs for you and your little one tomorrow. Keep us posted! He will amaze you after this is all over.
    Jamie

    Mom of 2 wonderful boys! ;)
    Wife to hubby that survived testicular cancer 2009
    Jacob - 6 years old
    Justin - 3 years old~ Right Lambdoid synostosis/
    Surgery 10/22/07 , sleep apnea, multiple food allergies, acid reflux, low muscle tone, pectus, asthma, and chiari malformation secondary to cranio.

    Faith, Hope and Love

    Justin's Story
    www.caringbridge.org/visit/justinjones

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