Day one: Liam was born June 20th, 2008 at U of M.
Day two: NS resident comes into room and says he has saggital craniosynostosis. Explains full craniotomy and probable gross blood loss. Mom and Dad fall apart and stay in pieces until we can get CT scan five weeks later.
Five weeks later: CT san and consult with craniofacial team at U of M (Muraszko and Buchman). Ready to hear the run down and carrying two pages of questions. Doc say that sutures are all open and Liam will not ever need surgery. Buchman shows us exercises to correct Liam's torticollis. Husband and I break down in parking garage- too good to be true! Liams head continues to take on a more normal shape, but I will always have concerns. Especially at seeing the CT images myself, a was copy sent home with us. Metopic was more closed than the rest. I start to notice vertical ridge on Liam's forehead.
January 2009: Liam can not get over cold from the holidays, still very stuffy so we go the the pediatrcian. She sees facial asymmetries, sends us back to Buchman.
March 2009: Buchman says asymmetry is due to torticollis and to work harder at exercises. No need to come back to him.
Today: Liam still has ridge running from fontanele to nose. Can feel it and you can see it. Fontanele is still open but growing smaller. I think there is temple pinching and egg shape from bird's eye view. Email, pics and 5 week CT images sent to Dr. Fearon last Wednesday...haven't heard back yet....will I? Am I just shell shocked or do I have cause for concern? Sometimes I feel like the lack of time spent in a doc visit signifies that the doc didn't do a proper eval. Anyone ever feel this way? I'll post pics so others can weigh in....