Was surgery not recommend w/ a diagnosis of cranio? Or did you choose not to do surgery? This is the place to share your stories and questions.
Hi there, my 19month old just recently had a CT scan to diagnose sagittal cranio. We had a nervous wait for the results and appointment with...
My son underwent the Endoscopic Cranio Repair at Children's Hospital in St. Louis for both a Metopic and Saggital fusion. We did helmet therapy for...
Hi guys, my son has sagittal craniosynostosis. I can almost talk myself out of surgery! Id like to see photos of untreated older kids and adults with...
At what age do the risks of not doing surgery become less?
Hi everyone. I posted in the Welcome Mat that we were waiting on a CT scan for an occipital protrusion, bossing forehead, and ridge at her hairline....
Hi all,Just thought I would add some updated pics of Shane to my profile. He is 5 1/2 years old now and I can finally see the ridge starting to...
My 8 month old daughter went to Vanderbilt in Nashville for a CT last month by referral of her pediatrician because I kept pushing the issue. Well...
Hi, does anyone know a cranio specialist in Australia? Our paediatrician says our 15 month old sons metopic is too mild to bother the cranio facial...
Hi, I'm new here. I need some advice! My son is 10 months old, was a breech baby, and has a longer looking head. It looks pretty good in the...
I was wondering how many of you wait and see mommies had a child with developmental delays at time of diagnosis? If you did, how is your child now? ...
Shortly after Kd was diagnosed we noticed that she has some bulging over her ears. It isnt very noticeable and hoping it will be less so as her hair...
Hello, my dd was diagnosed at age 2. Her sagittal suture fused early and her coronal one is partically fused. We have seen 2 PS and 2 NS who all have...
Hi, I found this forum a few weeks ago after my daughter's physician told me that he suspected she had cranio. Fast forward to this week: we've...
Hello everyone. We recently were informed that our little boy Rune's metopic suture had prematurely fused. We're guessing this was already the...
I posted some recent pictures of Ainsley in my profile. What do you think? I think she still looks good. I dont think her forehead has gotten any...
Hi all, Just wanted to mention that I posted some new headshots and birdseye photos of Ainsley in my albums. She is almost 3. Mild metopic,...
Hi all, I posted a thread quite a few months back and circumstances have not changed, our Son (Sag cranio) is a mild case and we have gone for a...
Hi everybody, I am new here and mum of a 10 months old baby with a triangular shaped head. Our pediatrician said there's a problem about the shape...
My daughter who is 4 months old has been diagnosed with Left unicoronal craniosynostosis. She has astigmatism in right eye. We may not put her...
Has anyone decided NOT to do surgery with regards to Lambdoid synostosis? I know this is a long shot but I just have to ask. Thanks for...
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