Forum: The Welcome Mat

Hi everyone! I thought I would introduce myself and tell you a little of our cranio story. My name is Karen and my son Jordan was diagnosed with...

Hello, I'm so glad that I found this forum! What's so different about this site is that older kids and adults have shared their experiences living...

As some will notice I have deleted the thread posted by dannlark. I felt that there was too much negativity and hostility in the posts. And I felt...

This is just a big shout out to all the mums here who share there stories and hearts and time with others who are going through the cranio journey. ...

I thought my son's forehead looked a bit narrow and the sides a bit pinched, and felt a ridge...yikes! :HolySheep It's nothing that you would notice...

Hi! Im Casey. My husband and I have a 4 month old with saggital craniosynostosis. Owen is a beausiful baby boy and a life changing blessing. I've...

We had our appt with the NS yesterday.. Dr Boggan at UC Davis in Sacramento.. He took one look at Kolby, and felt his head for a few seconds and...

Hello! I just found this website and am hoping that you all can give me some advice on choosing a surgeon for my little boy. He is 4 and a half...

Do I need a copy of my xrays or whatever to send him an email? Or are pictures sufficient? I feel pretty awkward about emailing him, but I'd...

I'm so interested to have found this forum. When my son Willie was born and diagnosed and operated on in 1987, I would have loved to have had this...

Hi all, my name is Khadra, I am a mom of four kids Lizzie age 5, Kayla age 4, Gage age 2, and Max 6 months. I am having a stressful time of things...

Our referral finally went through, and we are scheduled to see a specialist Thursday!! Though, I'm not sure what kind of specialist.. lol They...

Hi Everyone - I posted to introduce my son Patrick last week. We had a consult with Dr. Hal Meltzer at Children's Hospital in San Diego today and he...

I'm looking for anyone who may have had cranio surgery in Jacksonville Florida. I have a 7 week old daughter who needs surgery at the end of June...

I posted a couple of weeks ago about our son Grady who was diagnosed with craniosynostosis of the squamosal suture, which is very rare. The last...

Hi, Posting here in hopes anyone can suggest surgeons in spokane, seattle, or portland? I'm Harry Maximilian's dad. Harry is 10 weeks old....

Hi my name is Georgia and I am mum to 7 month old Luke. He was diagnosed with Sagittal synostosis at 3 months, and is due to have Cranial Vault...

Finally some support. I am falling apart slowly. Thank goodness there are parents out there who know what I have been going through! There are so...

Hi everyone! I'm Evelien, mom of a girl and two boys. I live near Amsterdam, The Netherlands. My youngest son, Stijn, was born with metopic cranio....

Hi, I only posted once way back, end of November, I believe. I have id. twin boys and they were both thought to have metopic craniosynostosis. I...