Please use this forum for post-op experiences. Post your concerns, questions and advice. Please remember- with any serious medical concerns, you should talk to your child's doctor!
Sleeping Post-Op: What has happened? Suddenly your little angel that was sleeping in 5-6 hour increments or even through the entire night is now...
My son had a distraction surgery this spring that increased his head circumference by over 2 inches (which finally relieved his terrible pressure,...
Hi all,Tiffany has been recovering great, she's 5 months old now and ~5weeks post..But this past week on her left side of head just around incision...
I was wondering how often he will have to see the surgeon for a follow up after surgery. His last surgery for something else it was a 2 weeks...
We are almost 1 week post op for right coronal unilateral CVR (surgery was Wednesday 4/10/2013), and our daughter Hannah is beginning to look like...
After our daughter's first full day of helmet therapy we had to discontinue the helmet because there was too much pressure on her incisions - they'd...
Hi All! My 8 year old son recently went through a second CVR (first was at 6 months old) for saggital due to increased ICP and Headaches. I noticed...
Hi Guys, It's close to three months post op. Milo has had three "significant" falls. It is very hard to keep a daredevil little four year old...
Hi my gal had FOA surgery. 2 weeks after surgery, there was a bit of tear in the stitch near the top of her head, exposing some part of the...
Thanks!
My son had his cvr for metopic on 8/6. While the initial swelling has gone down significantly, he looks unrecognizable from before the surgery. I'm...
My son is about a week and a half post op. He had an open cranioplasty and has an incision from ear to ear. Still some swelling but much better now...
Makynlee had CVR on June 12, which was her 6 month birthday. The day of surgery she was 7.7 kg (16.94 lbs). She has since gained over 2 lbs. Not sure...
My daughter, 10 months old, had unilateral coronal synostosis surgery done in Austin on 22nd May. She is doing great in recovery but I have a...
Micah is 6 days post op now and is still extremely fussy, has a cough, is vomiting at night and has a fever of 100.4. Is this normal??? I am...
Surgery was Monday, so that makes us 5 days post op and Clayton's poor eyes are still super puffy and pretty much swollen shut. By the end of the...
Okay. So my lil guy is 3 days post-op and hmmm goes #2 a lot. Is this standard?
My daughter is 7m post op. Her head is looking great, but I do still feel a soft spot. Is this normal? When does the head physically feel hard like...
I am sure this has been answered ad naseum somewhere. I apologize. I am far too tired to do a search to find this right now. Hopefully someone can...
Has anyone here done EC before and after the surgery? Our daughter has been very successful with EC so far and we are hoping to be able to continue...
Z has had sooo much going on in the past 4 weeks, but all in all he is doing pretty good. I have a few concerns about his head, which I'm sure is...
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