Forum: Our Stories

I was so happy to be pregnant! I couldn’t believe it! I was really going to be a mommy. Just that quick, the problems started. I had unexplained...

Wow - our surgery date is closing in on 7/18 and I can't believe it's here. For so long it seemed so far away. Tadpole will be 7 months, 3 weeks old...

And I didnt want to do this again! Some of you may remember me, my son Hayden had a CVR for metopic cranio in April '08. I just gave birth to my...

hi all.....just wondering if anyone out there went for the spring assisted surgery for sagittal cranio. Im living in sydney australia and would...

on one of Lucas' 2 month well baby check the doctor was feeling his suture lines and thought that it felt like it was still overlaping but sent a...

I posted this in Welcome Mat, but I think it is appropriate here also. I am reposting it here with hopes of meeting and getting to know more cranio...

I know this is long overdue.. Knowing I was diagnosed with bicoronal craniosynostosis as an infant, I knew that there was a possibility of...

It's a bit long so if you don't want to read my feelings on this journey, you can skip to the bottom and just read about the surgery part. Enjoy! ...

Well, earlier this year I joined craniokids after having my daughter Abigail. I have Crouzon's syndrome, which involves craniosyntosis-usually of the...

Where to even begin. I'm sure you all know how I feel; your mind is racing with so many thoughts, so many things you want to say, things you can't...

Austin's Journey July 7, 2005 - Austin came into this world at 2:28AM. The vacuum had to be used because he was not progressing down the birth...

Hello everyone. I'm a 32 year old male and I have Craniosynostosis. I finally found out why my forehead was round instead of flat...and it's due to...

Hello everyone, I am a Gramma for the first time and found this site after finding out my little grand baby had to have the surgery. She had her...

I knew my baby girl was breech for more than half of my pregnancy. When asked the nurse about it at 34 weeks she told me this was my first so I...

***I see many families struggling with a diagnosis so I wanted to put this up*** MAX'S STORY I wasn’t happy with the news that day on...

Some of you may have seen this on FB, but I'm copying it here as well. I always meant to share Zack's story, but I never got around to it until now....

Bare with me, its long! I'll come and add bits in as and when things change. Ok back to the start... Diagnosis When Aaron was just 4 weeks...

I delivered carter by C-Section On july 26th 2010. C section was performed to reduce risk since my first son was an emergency C section so it was...

Our youngest daughter, Sydney, was born on July 1, 2008, at 25 weeks gestation, weighing 1 pound 11 ounces. Just before her release from the NICU, at...