The following threads are a lists of questions we have come up to help you when meeting with your doctors
These questions were put together to help you when you are getting ready to leave the hospital. (The hospital staff will most likely go over most of...
These questions were put together to help you once the surgery has been booked. They would be helpful to ask during a pre-op appointment: Will you...
Here are some of the questions that may help you when you first meet your Neurosurgeon: What type of Craniosynostosis does my child have? ...
I'm not sure if I am posting this in the right place because I'm new to cranio kids, I apologize if it's not where it should be. My daughter is 8...
Hi all, We are seeing the geneticist tomorrow and I was wondering if anyone had specific questions they thought were helpful to ask the geneticist....
Hello all, when I met with the cranio doctor this week everything he told me was pretty much what I was expecting...except he uses titanium...
Hi everyone... Just got back from the audiologist and we were told that Kamilah has a moderate hearing loss :no I'm so sad ...it seems that...
hello,everyone here.I am Gloria,mother of apple 21-month, who is with coronal. She got the surgery 2 months ago, and now our doctor in China here...
We have only been referred to a 'normal' hospital, not one of the 4 UK supra units that carry out cranio surgery. I have read a lot of posts about...
I'm new here and not sure if I'm even posting in the right area... I am looking for any recommendations for a specialist in southern California. I am...
My husband and I need some advice on whether it's better to use disolveable plates/skrews or disolveable stitches?? Does one produce better results?...
I haven't been able to find much regarding what to ask an ophthalmologist, so here's what I came up with based on Jesse's metopic and his specific...
I thought I'd post these. I think most of them are double of what is already on here, but I know some are not. I was going thru Sophie's surgery...
I got a very short a brief reply from him saying he recommends a cranial facial doctor consultation, working with a team. Doesn't he work with a...
I learned at 3 years old my mom said they put implants in my head an it feels weird an looks awkward is there any such way of getting them removed or...
We, of course, will go anywhere to find the "best" surgeons, but how do we know? we are in gainesville, florida. It seems that just about every...
Im 22 years old an I have no inssurance atm an im in need of a 2nd surgery for craniostytosis. What are my options ? What inssurance company should I...
I have heard that CVR is a possibility for my 14 month old with metopic/trigon, but I haven't been able to find out much about exactly what a CVR is....
hi all, i havent been on much since the surgery, eden is now 9 wks post op today for metopic, we have been back to alder hey today to get the scar...
My Daughter was born on the 16th Feb and was diagnosed with sagittal cranio at 3 months. At 4 months she had spring cranioplasty surgery. The surgery...
Teagen's surgery is this Tuesday but we leave tomorrow for pre-surgery testing and other preparations. Last night I totally lost it being so worried...
This is an awesome site for support and encouragement, but my brain can't help going crazy after a while with information overload! Everyone's...
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