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Forum: Testing and Surgery

Have a question about testing or surgery? Want to share CT scans or surgery pictures? You found the right forum!

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  1. Surgery and Recovery Photos

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    Private

  2. Questions to Ask

    The following threads are a lists of questions we have come up to help you when meeting with your doctors

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    1. Carmen77

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    • Threads: 36
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  3. Items to bring to hospital

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    • Threads: 18
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  4. Post Operative Care

    Please use this forum for post-op experiences. Post your concerns, questions and advice. Please remember- with any serious medical concerns, you should talk to your child's doctor!

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    1. Carmen77

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    • Threads: 204
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  5. Helmet Therapy

    For tips and questions about helmet therapy.

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    • Threads: 266
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  1.    

  2. Sticky Thread Sticky: What I wish I would have known before surgery

    There was a GREAT thread I read before Q went for surgery and I can't find it now...It was SO helpful in getting me mentally, physically and...

    Started by three.little.boys‎, 03-17-2008 12:32 AM
    10 Pages •
    1 2 3 ... 10
    1 Attachment(s)
    • Replies: 99
    • Views: 20,552
    jln315
    03-28-2013, 10:13 AM Go to last post

  3.    

  1. CT scan tips

    Our 10 month old has his CT scan tomorrow. We had a scan attempt on Friday, but my LO failed to stay asleep...however I didn't know he was suppose...

    Started by imfinite‎, 05-06-2013 09:57 PM
    • Replies: 6
    • Views: 281
    Mommy40
    Yesterday, 08:48 PM Go to last post

  2. May 21st (Metopic) is the date.

    Alrighty... Bridger is having surgery on 5/21, just around the corner. I think I am holding up ok but my husband is having nightmares about it. I...

    Started by DianeV‎, 05-15-2013 07:53 PM
    • Replies: 4
    • Views: 63
    DianeV
    05-17-2013, 10:55 AM Go to last post

  3. sagittal and metopic advice

    Hi asking for some advice?iv always thought my daughters head was bulging out slightly at the front but after mentioning to doc was given the all...

    Started by chelseaxax‎, 04-11-2013 04:55 PM
    • Replies: 1
    • Views: 141
    DianeV
    05-15-2013, 07:50 PM Go to last post

  4. Whats the youngest to have Metopic Cranio CVR Surgery?

    Hello. I was wondering what the youngest age to have the CVR surgery is?

    Started by JP27‎, 05-01-2013 05:42 PM
    • Replies: 2
    • Views: 114
    DianeV
    05-15-2013, 07:38 PM Go to last post

  5. 2 days post op and baby will not eat

    We are 2 days out from a CVR/FOA for right coronal. Things went well in surgery and the first 24 hours went well overall. A small drop in temp but...

    Started by meredith3‎, 05-10-2013 09:59 PM
    • Replies: 4
    • Views: 206
    geneve
    05-13-2013, 11:15 PM Go to last post

  6. Help! Thinking of switching doctors

    Okay, so I haven't even seen the NS yet and my hubby already doesn't like him. We had an appt. scheduled for today and he cancelled at the last...

    Started by teresa8098‎, 04-24-2013 04:19 PM
    2 Pages •
    1 2
    • Replies: 11
    • Views: 406
    fitmomof2ae
    05-09-2013, 08:37 PM Go to last post

  7. Surgery April 29th

    Our surgery date is April 29th and we find ourselves in moments of peace and moments of pure torture where we want to back out and run away..... I...

    Started by nesurfr‎, 04-21-2013 07:35 AM
    2 Pages •
    1 2
    • Replies: 18
    • Views: 582
    evergreenmom
    05-05-2013, 12:19 AM Go to last post

  8. Wake Forest/ Dr. Lisa David

    Has anyone met/worked with Dr. Lisa David at Wake Forest/Brenner Chidlren's? I googled her and found some icky reviews, but then found some...

    Started by we4jedi‎, 05-02-2013 02:46 PM
    • Replies: 5
    • Views: 158
    *Jessica*
    05-03-2013, 03:13 PM Go to last post

  9. Surgery scheduled for May 8th

    So, CVR/FOA is scheduled for Lillian on May 8th at Lutheran General in Park Ridge, near Chicago. Dr. Ruge is the neurosurgeon and Dr. Vicari is the...

    Started by meredith3‎, 04-11-2013 01:13 AM
    • Replies: 2
    • Views: 214
    Annavoig
    04-18-2013, 10:39 AM Go to last post

  10. any parents from uk

    Wanting to know about what happens in uk so is there any uk parents still use this site? X

    Started by urbanfox‎, 02-07-2013 05:08 PM
    3 Pages •
    1 2 3
    • Replies: 27
    • Views: 1,087
    liliana
    04-17-2013, 06:58 PM Go to last post

  11. Surgery Cost and Explanation of Benefits

    Hello everyone! My son(almost 4) has been diagnosed with saggital...

    Started by saisri‎, 04-12-2013 10:53 PM
    • Replies: 3
    • Views: 234
    Amy K
    04-13-2013, 10:38 PM Go to last post

  12. We have a date! :/

    So, we met with the cranio facial team today. Just as I suspected, Grayson was confirmed to have a fused right coronal suture. They really...

    Started by GraysMom‎, 04-10-2013 08:19 PM
    • Replies: 3
    • Views: 121
    jjmc123
    04-11-2013, 07:06 AM Go to last post

  13. We are on the other side!

    Reese had her surgery at SickKids last wednesday for sagittal and she was a rockstar! She is doing really well and it's amazing to see the...

    Started by shoppinggirl‎, 04-10-2013 10:54 AM
    • Replies: 5
    • Views: 148
    carolineb
    04-10-2013, 10:30 PM Go to last post

  14. Master CT Scan Thread

    I thought it would be helpful to have a master list of our kiddos' CT scans along with their Dx's. This way, newer cranio parents can see what...

    Started by Lydiaach‎, 04-03-2013 07:30 PM
    7 Attachment(s)
    • Replies: 5
    • Views: 203
    fitmomof2ae
    04-09-2013, 03:30 PM Go to last post

  15. Adelaide Australia - anyone had negative experience with surgery

    Hi guys, just wondering if anyone has had any negative experiences with surgery from prof David and team, or required multiple surgeries.Cheers

    Started by PHILL.MEL‎, 04-06-2013 06:42 AM
    • Replies: 0
    • Views: 110
    PHILL.MEL
    04-06-2013, 06:42 AM Go to last post

  16. Dx is fused Coronal and Saggital...

    ...but to me, EVERYTHING looks fused. What do you think?

    Started by Lydiaach‎, 04-03-2013 05:18 PM
    2 Pages •
    1 2
    5 Attachment(s)
    • Replies: 14
    • Views: 439
    Lydiaach
    04-05-2013, 01:29 AM Go to last post

  17. How sick is too sick for surgery?

    We're headed for our pre-op apt on Friday and yesterday our daughter developed a cough. Her 6-month well baby check was on Friday and she was 100%...

    Started by Scubanewbie‎, 04-01-2013 02:44 PM
    • Replies: 9
    • Views: 267
    fitmomof2ae
    04-03-2013, 10:12 PM Go to last post

  18. Surgery for Sagittal on Wednesday!

    Getting really nervous for my baby! Any last words of advice or things I should know. Should I bring my stroller! She loves going for rides in it. ...

    Started by shoppinggirl‎, 04-01-2013 08:46 AM
    • Replies: 5
    • Views: 180
    fitmomof2ae
    04-03-2013, 10:02 PM Go to last post

  19. Daughter out of surgery

    Our daughter just got out of surgery (endoscopic for lambdoid at Boston children's). She did well - waiting to see her now. Whew.

    Started by carolineb‎, 03-25-2013 09:51 AM
    2 Pages •
    1 2
    • Replies: 14
    • Views: 405
    fitmomof2ae
    04-01-2013, 09:11 PM Go to last post

  20. Spring assisted surgery on 18th April.. Sydney Australia

    Hi new on here, our son is booked for surgery next month at Randwick children's hospital. He will be 51/2 months then. Just looking for feedback on...

    Started by Shell‎, 03-22-2013 09:05 PM
    • Replies: 4
    • Views: 210
    MikeB
    04-01-2013, 06:56 AM Go to last post
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