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Forum: Resources

Here's the spot for educational informaion and discussions.

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  1. Surgeons By Area

    We are listing contact info for surgeons that members have used for cranio surgery. WE ARE NOT ENDORSING ANY SURGEON LISTED HERE. It is simply contact information. This is not a complete list. If your surgeon is not listed, feel free to contact a admin with the information.

    Moderators:

    1. Jennifer

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    • Threads: 58
    • Posts: 60

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    1. Asia

      Moderators:

      1. Jennifer

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      • Threads: 1
      • Posts: 1

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    2. Australia

      Surgeons in Australia

      Moderators:

      1. Jennifer

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      • Threads: 1
      • Posts: 2

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    3. Canada

      Surgeons in Canada

      Moderators:

      1. Jennifer

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      • Threads: 1
      • Posts: 1

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      Ontario Go to last post

      by Jennifer

      06-20-2011, 08:16 PM

    4. Europe

      Surgeons in Europe

      Moderators:

      1. Jennifer

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      • Threads: 3
      • Posts: 4

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    5. United States A-D

      Surgeons in Alabama, Alaska, Arizona, Arkansas, California, Colorado, Connecticut & Deleware

      Moderators:

      1. Jennifer

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      • Threads: 8
      • Posts: 8

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    6. United States F-K

      Surgeons in Florida, Georgia, Hawaii, Idaho, Illinois, Indiana, Iowa, Kansas & Kentucky

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      1. Jennifer

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      • Threads: 9
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    7. United States L-M

      Surgeons in Lousiana, Maine, Maryland, Massachusetts, Michigan, Minnesota, Mississippi, Missouri & Montana

      Moderators:

      1. Jennifer

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      • Threads: 9
      • Posts: 9

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    8. United States N-O

      Surgeons in Nebraska, Nevada, New Hampshire, New Jersey, New Mexico, New York, North Carolina, North Dakota, Ohio, Oklahoma & Oregon

      Moderators:

      1. Jennifer

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      • Threads: 11
      • Posts: 11

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      Nebraska Go to last post

      by Jennifer

      06-20-2011, 06:27 PM

    9. United States P-T

      Surgeons in Pennsylvania, Rhode Island, South Carolina, South Dakota, Tennessee & Texas

      Moderators:

      1. Jennifer

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      • Threads: 6
      • Posts: 6

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      Pennsylvania Go to last post

      by Jennifer

      06-20-2011, 06:17 PM

    10. United States U-W

      Surgeons in Utah, Vermont, Virginia, Washington, Washington DC, West Virginia, Wisconsin & Wyoming

      Moderators:

      1. Jennifer

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      • Threads: 8
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  1. Mild Metopic Forum

    I hear that most members here are also members of CAPPS. So, I hope that it is okay to post this here.. "MILD" Metopic families. World...

    Started by momoftwo‎, 07-09-2008 09:25 AM
    3 Pages •
    1 2 3
    • Replies: 23
    • Views: 2,408
    Amy K
    07-25-2008, 06:11 PM Go to last post

  2. billing statements

    well not sure if this is where to post this or not but i'm gonna put it here. Zach is on medicaid bc erics employer doesnt offer insurance. OH...

    Started by dnholst867‎, 06-06-2008 12:26 PM
    • Replies: 5
    • Views: 1,021
    AllyCat
    07-06-2008, 05:39 PM Go to last post

  3. Thumbs up Link to many Cranio study results, very good...

    http://www.jenniferboyer.com/CranioAcademic2-1.htm

    Started by dannlark‎, 07-03-2008 01:28 PM
    • Replies: 2
    • Views: 753
    AllyCat
    07-03-2008, 02:57 PM Go to last post

  4. Article - possible link between cranio and developmental delays

    I found this article really interesting and wanted to share here... http://depts.washington.edu/chdd/outlook/outlook05_16.3.pdf

    Started by kking‎, 06-26-2008 03:12 PM
    • Replies: 9
    • Views: 979
    kking
    06-27-2008, 08:53 AM Go to last post

  5. Pre-existing condition

    Did any of you have a change in insurance between the time of diagnosis and surgery? My husband is wanting to take a new job but we are trying to...

    Started by CartersMommy‎, 05-26-2008 11:04 PM
    • Replies: 8
    • Views: 879
    CartersMommy
    05-31-2008, 06:38 PM Go to last post

  6. Cranio Photos & CTs site

    Found this site with good pictures and CT's. It's a bit graphic, fair warning, but very informative and a good comparative place to go... ...

    Started by dannlark‎, 05-23-2008 03:25 PM
    • Replies: 8
    • Views: 915
    charliesmummy
    05-24-2008, 08:48 AM Go to last post

  7. Really cool photography site

    In researching a syndrome that our family is being tested for, I ran accross this website and thought it was awesome! I wonder if we could get them...

    Started by fullhouse3b2g‎, 05-09-2008 02:16 PM
    • Replies: 3
    • Views: 728
    fullhouse3b2g
    05-09-2008, 06:17 PM Go to last post

  8. I got an email today...

    ...from the assistant to one of the doctors at Children's in Boston because I'm listed as the state contact on CAPPS. We went back and forth and I...

    Started by Lauren‎, 05-02-2008 06:55 PM
    • Replies: 9
    • Views: 861
    Katie
    05-03-2008, 07:51 AM Go to last post

  9. Moved: Am a little worried now

    Started by Montyl21‎, 05-12-2008 12:00 PM
    • Replies: -
    • Views: -
    Katie
    04-26-2008, 06:18 AM Go to last post

  10. Insurance help...PLEASE!

    Ok- I need some help fighting our insurance company. Has anyone had first hand experience with working at an ins. co, or fighting one? I recieved a...

    Started by three.little.boys‎, 04-14-2008 01:39 AM
    3 Pages •
    1 2 3
    • Replies: 28
    • Views: 2,306
    SamanthaLei
    04-25-2008, 09:58 AM Go to last post

  11. Interesting article I found on the web..

    I found an article on the web about possible causes of Craniosynostosis. There probably isn't anything new in it (essentially, they list a whole slew...

    Started by Nicholas' Mom‎, 04-22-2008 01:45 PM
    • Replies: 8
    • Views: 1,423
    AllyCat
    04-23-2008, 02:34 PM Go to last post

  12. Did u have to pay?

    Did u have to pay for your cranio surgery? If so how much and where did u have it done?

    Started by carrielulu‎, 12-12-2007 12:40 PM
    4 Pages •
    1 2 3 ... 4
    • Replies: 31
    • Views: 2,367
    Jenny
    04-13-2008, 03:13 PM Go to last post

  13. NS's in Iowa (for a friend)

    I have a friend who is looking for a good NS in Iowa. Her newborn baby may have a syndrome that is not (not that I know of anyway) related to...

    Started by fullhouse3b2g‎, 03-21-2008 11:57 AM
    • Replies: 2
    • Views: 575
    fullhouse3b2g
    03-22-2008, 03:44 PM Go to last post

  14. Kansas City Cranio Team

    A lady on the other support that I am a member of, suggested looking into Dr. Jeffrey Colyer in Kansas City. Her last surgery was 10 years ago but he...

    Started by mommysbudbud‎, 12-12-2007 03:06 PM
    • Replies: 4
    • Views: 780
    three.little.boys
    03-06-2008, 09:21 PM Go to last post

  15. Humboldt County Doctor

    I am looking for a doctor in Humbolt County that is experienced with cranio issues. My pediatrician just keeps saying to wait and wait and wait. My...

    Started by grayridge‎, 03-03-2008 02:23 PM
    • Replies: 8
    • Views: 747
    three.little.boys
    03-03-2008, 08:17 PM Go to last post

  16. Arrow Help with listings

    Hey everyone! I'm trying to make sure we have the most up to date information on centers and doctors that treat craniofacial conditions possible. If...

    Started by Katie‎, 12-19-2007 02:18 PM
    • Replies: 6
    • Views: 788
    Tawnia
    02-16-2008, 06:08 PM Go to last post

  17. Long time no talk... looking 4 a good doc.

    Hey everyone! Its been awhile since I have been on. Been going through alittle bet of a rough time. We fell behind on bills and unfortuantly my car...

    Started by SadieBug07‎, 11-25-2007 08:57 PM
    • Replies: 6
    • Views: 838
    mommysbudbud
    12-02-2007, 10:18 AM Go to last post

  18. good DR. in Humboldt county California

    If you live in Humboldt Dr. Dugan is a great Pediatrician to get testing and a refferal to a neurosurgeon from. He has worked post op with cranio...

    Started by Alakai's mom‎, 11-11-2007 05:03 PM
    • Replies: 0
    • Views: 575
    Alakai's mom
    11-11-2007, 05:03 PM Go to last post

  19. In Need!!!

    I am in need of volunteers for the HATS OFF TO CS KIDS!! You can read the other post on this tread to hear more about it. I am trying to talk to...

    Started by mom2mykidos3‎, 11-19-2006 11:05 PM
    2 Pages •
    1 2
    • Replies: 13
    • Views: 2,006
    scdillon
    10-01-2007, 12:08 PM Go to last post

  20. Hats off to CS Kids

    Hats Off to CS Kids I was thinking of starting a new way for families to get support. What my idea is, is to have a contact for each state for...

    Started by mom2mykidos3‎, 11-15-2006 09:20 PM
    • Replies: 0
    • Views: 734
    mom2mykidos3
    11-15-2006, 09:20 PM Go to last post
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