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Forum: Resources

Here's the spot for educational informaion and discussions.

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  1. Surgeons By Area

    We are listing contact info for surgeons that members have used for cranio surgery. WE ARE NOT ENDORSING ANY SURGEON LISTED HERE. It is simply contact information. This is not a complete list. If your surgeon is not listed, feel free to contact a admin with the information.

    Moderators:

    1. Jennifer

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    • Threads: 58
    • Posts: 60

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    1. Asia

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      1. Jennifer

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      • Threads: 1
      • Posts: 1

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    2. Australia

      Surgeons in Australia

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      1. Jennifer

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      • Threads: 1
      • Posts: 2

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    3. Canada

      Surgeons in Canada

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      1. Jennifer

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      • Threads: 1
      • Posts: 1

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      Ontario Go to last post

      by Jennifer

      06-20-2011, 08:16 PM

    4. Europe

      Surgeons in Europe

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      1. Jennifer

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      • Threads: 3
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    5. United States A-D

      Surgeons in Alabama, Alaska, Arizona, Arkansas, California, Colorado, Connecticut & Deleware

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      1. Jennifer

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      • Threads: 8
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    6. United States F-K

      Surgeons in Florida, Georgia, Hawaii, Idaho, Illinois, Indiana, Iowa, Kansas & Kentucky

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      1. Jennifer

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      • Threads: 9
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    7. United States L-M

      Surgeons in Lousiana, Maine, Maryland, Massachusetts, Michigan, Minnesota, Mississippi, Missouri & Montana

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      1. Jennifer

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      • Threads: 9
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    8. United States N-O

      Surgeons in Nebraska, Nevada, New Hampshire, New Jersey, New Mexico, New York, North Carolina, North Dakota, Ohio, Oklahoma & Oregon

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      1. Jennifer

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      • Threads: 11
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      Nebraska Go to last post

      by Jennifer

      06-20-2011, 06:27 PM

    9. United States P-T

      Surgeons in Pennsylvania, Rhode Island, South Carolina, South Dakota, Tennessee & Texas

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      1. Jennifer

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      • Threads: 6
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      Pennsylvania Go to last post

      by Jennifer

      06-20-2011, 06:17 PM

    10. United States U-W

      Surgeons in Utah, Vermont, Virginia, Washington, Washington DC, West Virginia, Wisconsin & Wyoming

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      1. Jennifer

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      • Threads: 8
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  1. Facebook Awareness BIG WIN for Cranio/Plagio!!

    Facebook users do any of you know about the group "I Love My Kids"? They have 180,668 fans as of today. Well they posted our video about an hour...

    Started by Leighasmom‎, 04-24-2010 11:34 AM
    • Replies: 6
    • Views: 1,403
    Leighasmom
    04-25-2010, 08:46 PM Go to last post

  2. thickened frontal bone

    I know I've mentioned the "thickening" of Payne's frontal bone...but I couldn't find anything on here or anything anywhere of others that have heard...

    Started by paynesmom‎, 07-24-2009 10:31 PM
    • Replies: 9
    • Views: 2,555
    Debbied
    02-13-2010, 10:47 AM Go to last post

  3. Finding a doctor?

    Hi everyone. My son has a CT scan scheduled for this Monday morning which will most likely confirm lambdoid cranio. We are in central NJ. Our...

    Started by Lauren82409‎, 01-23-2010 10:59 PM
    2 Pages •
    1 2
    • Replies: 12
    • Views: 1,946
    frankiesmom
    02-09-2010, 02:22 PM Go to last post

  4. Insurance Appeal Help

    As many of you have done, I'm going to attempt to appeal the denial of coverage for Garrett's cranial helmet. Does anyone have a sample letter? I...

    Started by garrettsmomma‎, 01-22-2010 11:03 AM
    • Replies: 2
    • Views: 1,117
    Laurie the IW
    01-22-2010, 04:21 PM Go to last post

  5. from a hospital web site! this makes more sense to me this time!!

    Craniosynostosis What is craniosynostosis? The normal skull consists of several plates of bone that are separated by sutures. The sutures...

    Started by momof2withcranio‎, 01-14-2010 01:21 PM
    • Replies: 3
    • Views: 1,063
    momof2withcranio
    01-14-2010, 06:20 PM Go to last post

  6. Miriam's School

    Ok, this may be long. (Bear with me) I used to come on this site a lot when Miriam was going through her surgeries, but haven't been here for a...

    Started by mom2mykidos3‎, 01-06-2010 03:42 PM
    • Replies: 6
    • Views: 1,001
    evergreenmom
    01-11-2010, 01:25 PM Go to last post

  7. A good article

    I was doing a little research to find out exactly what DIllon's surgery may involve and found this article. It's long, but has a wealth of...

    Started by Katie‎, 12-14-2009 04:42 PM
    • Replies: 3
    • Views: 860
    StephanieBeth
    12-21-2009, 08:44 PM Go to last post

  8. Post Good Article for Sagittal patients

    Classification System for Sagittal Craniosynostosis David, Lisa MD; Glazier, Steven MD; Pyle, Jeremy MD; Thompson, James MD; Argenta, Louis MD ...

    Started by fitmomof2ae‎, 10-28-2009 08:44 PM
    • Replies: 1
    • Views: 737
    Sophia's_mom
    10-28-2009, 09:14 PM Go to last post

  9. Will Medicaid pay?

    I had a question today that may be of help to other moms. The parent is covered by her state's Medicaid. She told me that the local surgeon does...

    Started by Laurie the IW‎, 10-16-2009 11:31 PM
    • Replies: 3
    • Views: 823
    Christina's_Mommy
    10-17-2009, 10:48 AM Go to last post

  10. But my insurer told me ...

    Hi ladies -- I have now heard from five CK moms who need insurance help. The five cases have much in common, so I will use them for a teaching...

    Started by Laurie the IW‎, 10-12-2009 01:55 PM
    2 Pages •
    1 2
    • Replies: 13
    • Views: 1,449
    Christina's_Mommy
    10-17-2009, 10:47 AM Go to last post

  11. Ten Steps to a Winning Appeal

    Laurie the Insurance Warrior here. I have attached the "nutshell version" of my appeal strategy: Laurie’s ten-step plan to a winning...

    Started by Laurie the IW‎, 10-09-2009 04:10 PM
    • Replies: 4
    • Views: 764
    Avery's Mom
    10-14-2009, 01:16 PM Go to last post

  12. Not education. INTIMIDATION.

    Well, I'm here now. Every person with any condition that requires them to actually USE their health insurance is in the same position that you are....

    Started by Laurie the IW‎, 10-13-2009 09:56 AM
    • Replies: 0
    • Views: 604
    Laurie the IW
    10-13-2009, 09:56 AM Go to last post

  13. Question Insurance Question

    I saw some posts on here about insurance................this is all new to me--siince we were diagnosed--and had our pre op all in on eweek and...

    Started by kpowers1‎, 10-02-2009 06:45 PM
    • Replies: 5
    • Views: 1,003
    Layla'smomE
    10-05-2009, 09:52 PM Go to last post

  14. Question Cappskids

    I registered over there a few days ago to ask if anyone had used TCH or any other Houston Docs and they didn't approve me which was odd and now it...

    Started by ~Em~‎, 09-25-2009 07:22 PM
    • Replies: 4
    • Views: 883
    Max's Mommy
    09-29-2009, 06:14 PM Go to last post

  15. Article from Dr. Fearon - Sagittal Cranio: Surgical Outcomes and Long-Term Growth

    In trying to get second, third, and fourth opinions on what to do about Ben's less than stellar post-op outcome, Dr. Fearon in Dallas sent me this...

    Started by Lara‎, 09-12-2009 03:14 AM
    2 Pages •
    1 2
    • Replies: 10
    • Views: 3,841
    *jules*
    09-12-2009, 02:55 PM Go to last post

  16. Autism Link

    Isaac had a follow-up appointment with Dr. Carson (NS) yesterday. This was the first time that we've been able to get Dr. Carson's opinion about...

    Started by fullhouse3b2g‎, 08-15-2009 10:05 AM
    • Replies: 7
    • Views: 2,118
    cheryl2
    08-25-2009, 01:45 PM Go to last post

  17. Special Education Advocacy

    I just wanted to let you all know that I am also a special education advocate - although I can only help "in person" in NY, I am available via...

    Started by Max's Mommy‎, 08-10-2009 10:07 PM
    • Replies: 6
    • Views: 870
    fullhouse3b2g
    08-13-2009, 11:27 PM Go to last post

  18. Moved: hole in skull post surgery

    Started by MarksDada‎, 06-06-2009 02:52 PM
    • Replies: -
    • Views: -
    craniomommynbaby
    07-03-2009, 04:17 PM Go to last post

  19. Cranio made front cover of our local paper

    http://www.examiner.com.au/news/local/news/health/mums-join-fight-against-rare-medical-condition/1514862.aspx I got 2 phone calls and a text...

    Started by mckennasmum‎, 05-17-2009 01:32 AM
    • Replies: 9
    • Views: 1,058
    mckennasmum
    05-20-2009, 06:27 PM Go to last post

  20. Insurance and Appeals

    Anyone have any good advice on how to write an appeal? We've not yet gotten through our surgery, but I am trying to be ahead of the game in so far...

    Started by Findlay'sMommy‎, 05-08-2009 02:54 PM
    • Replies: 5
    • Views: 894
    *Jessica*
    05-19-2009, 02:00 PM Go to last post
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