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Forum: Resources

Here's the spot for educational informaion and discussions.

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  1. Surgeons By Area

    We are listing contact info for surgeons that members have used for cranio surgery. WE ARE NOT ENDORSING ANY SURGEON LISTED HERE. It is simply contact information. This is not a complete list. If your surgeon is not listed, feel free to contact a admin with the information.

    Moderators:

    1. Jennifer

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    • Threads: 58
    • Posts: 60

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    1. Asia

      Moderators:

      1. Jennifer

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      • Threads: 1
      • Posts: 1

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    2. Australia

      Surgeons in Australia

      Moderators:

      1. Jennifer

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      • Threads: 1
      • Posts: 2

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    3. Canada

      Surgeons in Canada

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      1. Jennifer

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      • Threads: 1
      • Posts: 1

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      Ontario Go to last post

      by Jennifer

      06-20-2011, 08:16 PM

    4. Europe

      Surgeons in Europe

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      1. Jennifer

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      • Threads: 3
      • Posts: 4

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    5. United States A-D

      Surgeons in Alabama, Alaska, Arizona, Arkansas, California, Colorado, Connecticut & Deleware

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      1. Jennifer

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      • Threads: 8
      • Posts: 8

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    6. United States F-K

      Surgeons in Florida, Georgia, Hawaii, Idaho, Illinois, Indiana, Iowa, Kansas & Kentucky

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      1. Jennifer

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      • Threads: 9
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    7. United States L-M

      Surgeons in Lousiana, Maine, Maryland, Massachusetts, Michigan, Minnesota, Mississippi, Missouri & Montana

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      1. Jennifer

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      • Threads: 9
      • Posts: 9

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    8. United States N-O

      Surgeons in Nebraska, Nevada, New Hampshire, New Jersey, New Mexico, New York, North Carolina, North Dakota, Ohio, Oklahoma & Oregon

      Moderators:

      1. Jennifer

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      • Threads: 11
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      Nebraska Go to last post

      by Jennifer

      06-20-2011, 06:27 PM

    9. United States P-T

      Surgeons in Pennsylvania, Rhode Island, South Carolina, South Dakota, Tennessee & Texas

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      1. Jennifer

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      • Threads: 6
      • Posts: 6

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      Pennsylvania Go to last post

      by Jennifer

      06-20-2011, 06:17 PM

    10. United States U-W

      Surgeons in Utah, Vermont, Virginia, Washington, Washington DC, West Virginia, Wisconsin & Wyoming

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      1. Jennifer

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      • Threads: 8
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  1. Input about Doernbeckers and Seattle Childrens Hospital

    We have been referred to OHSU/Doernbeckers in Portland Oregon and our appointment isn't until May 18th to do a CT and meet with the NP, and Dr's...

    Started by estctodd‎, 03-07-2011 06:13 PM
    2 Pages •
    1 2
    • Replies: 11
    • Views: 2,770
    rwelch05
    03-21-2011, 07:32 PM Go to last post

  2. Smile Roman on cover of CAPPSKIDS brochure!

    Hi there, Just thought I'd share the news that a photo of my son Roman was chosen to be on the cover of CAPPSKIDS new brochure about...

    Started by Roman's Mom‎, 03-12-2011 09:58 PM
    • Replies: 8
    • Views: 1,659
    Roman's Mom
    03-13-2011, 12:02 PM Go to last post

  3. We were chosen to complete a birth defect study.

    I was asked to do a birth defect study on craniosynostosis, of course I said YES! I'm so happy to have been chosen for this study. So far I have had...

    Started by NCmommy‎, 03-05-2011 10:17 AM
    • Replies: 8
    • Views: 970
    Jennifer
    03-07-2011, 04:28 PM Go to last post

  4. Cranio Paper

    Hello All! I am currently in my final semester of undergrad and am completing my final research paper an presentation on Craniosynostosis! I've...

    Started by BrodesMom‎, 02-23-2011 08:49 PM
    • Replies: 2
    • Views: 545
    andscott
    03-02-2011, 11:45 AM Go to last post

  5. Insurance Question?

    Does anyone have any experience (unfortunately) with the transition from an employer sponsored insurance plan to COBRA and any other options once a...

    Started by Korben's Dad‎, 02-17-2011 12:27 PM
    • Replies: 5
    • Views: 654
    josh'smommy
    02-17-2011, 10:15 PM Go to last post

  6. Moved: Surgery in KY?

    Started by KaraD‎, 01-31-2011 08:21 PM
    • Replies: -
    • Views: -
    KaraD
    01-31-2011, 08:21 PM Go to last post

  7. Newspaper Article!

    Here's an article in our local newspaper about Aaden's cranio! ...

    Started by Nay‎, 11-28-2010 10:28 PM
    2 Pages •
    1 2
    • Replies: 13
    • Views: 1,488
    sproutgirl
    12-06-2010, 11:22 AM Go to last post

  8. Causes of craniosyntosis

    Is there any information out there on the causes of craniosynotosis??? I'm also concerned with the developmental delay that could be evident in...

    Started by Danielle‎, 05-11-2009 03:54 AM
    14 Pages •
    1 2 3 ... 14
    • Replies: 131
    • Views: 22,579
    sproutgirl
    11-25-2010, 11:36 AM Go to last post

  9. great website to show head shapes

    Hi, I found this site and wanted to share. It hasn't helped me becaue my son's head doesn't look quite like any of the images, but thought this might...

    Started by nycmomma‎, 12-05-2009 08:11 AM
    • Replies: 9
    • Views: 1,935
    SummerEhmann
    11-12-2010, 06:07 AM Go to last post

  10. Interesting article on NPR abot speech that I stumbled upon..

    Talks about speech and the center being located in the left temple area..Worth a quick read! ...

    Started by Debbied‎, 10-17-2009 11:24 AM
    • Replies: 9
    • Views: 1,303
    navyjen
    11-10-2010, 11:11 AM Go to last post

  11. Cranion Awareness On Facebook

    Hey all mel designed a beautiful ribbon for Cranio awareness on Facebook, its on Sharon's page and I thought it might be a good idea if we wall...

    Started by donnamilliezac‎, 04-22-2010 05:25 AM
    2 Pages •
    1 2
    • Replies: 13
    • Views: 2,222
    sproutgirl
    11-06-2010, 11:02 PM Go to last post

  12. John Hopkins Health Seminar

    Did anyone watch it?? I just caught up with it and found I already knew most of it but was good to learn about the incidence rates and the difference...

    Started by Sam Y‎, 10-02-2010 06:04 PM
    2 Pages •
    1 2
    • Replies: 16
    • Views: 1,657
    fitmomof2ae
    10-11-2010, 10:43 PM Go to last post

  13. Chiari info needed! ( for aaa & jolie)

    Hi everybody, my friend has a 16 year old who was diagnosed with "mild" chiari 2 years ago. She has always been a a-b student... now she is getting...

    Started by aembuff‎, 09-30-2010 02:28 PM
    • Replies: 4
    • Views: 1,122
    evergreenmom
    10-03-2010, 01:25 PM Go to last post

  14. Preventing re-closure of sutures?

    Do you know of anything that can be done after the surgeries to prevent sutures from re-closing? Types of therapies? Craniosacral? Supplements?

    Started by ProudMary‎, 09-18-2010 03:39 PM
    • Replies: 1
    • Views: 700
    evergreenmom
    09-18-2010, 09:12 PM Go to last post

  15. Tics and Tourette Syndrome

    Very interesting article!: http://www.aafp.org/afp/990415ap/2263.html

    Started by Shar‎, 05-19-2010 12:14 PM
    2 Pages •
    1 2
    • Replies: 11
    • Views: 2,846
    Perla
    06-24-2010, 03:42 PM Go to last post

  16. Brain Map

    I'm going to add the images here and info so you don't have to click and go to the website but the link is http://www.neuroskills.com/brain.shtml#map...

    Started by Leighasmom‎, 05-07-2010 09:59 AM
    • Replies: 7
    • Views: 1,240
    Etinker
    05-20-2010, 06:06 PM Go to last post

  17. bilateral lambdoid synostosis info.

    can anyone point me toward some info on bilateral lambdoid synostosis?

    Started by kerandbri‎, 11-30-2009 07:56 PM
    • Replies: 5
    • Views: 3,233
    kfa329
    05-07-2010, 10:49 PM Go to last post

  18. Symptoms of and info on Chiari...

    I came across this yesterday...thought it was a pretty thorough discussion of possible symptoms for anyone interested in Chiari malformation/...

    Started by evergreenmom‎, 04-07-2010 12:23 AM
    2 Pages •
    1 2
    • Replies: 13
    • Views: 3,337
    mommyjamieof2
    05-04-2010, 08:00 PM Go to last post

  19. Resources for our sensory (SI)/cranio kids

    I have been working with an amazing- seriously amazing- OT/PT/CST (cranial sacral therapist) who, within 2 days had my three month old sleeping 7...

    Started by nancy‎, 04-29-2010 09:06 PM
    • Replies: 4
    • Views: 962
    melsch
    04-30-2010, 12:33 PM Go to last post

  20. a small oiece of history about cranio!!!

    History of craniosynostosis surgery and the evolution of minimally invasive endoscopic techniques: the University of Florida experience. Clayman...

    Started by momof2withcranio‎, 01-18-2010 09:58 PM
    • Replies: 7
    • Views: 1,316
    nancy
    04-30-2010, 09:00 AM Go to last post
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