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Forum: Resources

Here's the spot for educational informaion and discussions.

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  1. Surgeons By Area

    We are listing contact info for surgeons that members have used for cranio surgery. WE ARE NOT ENDORSING ANY SURGEON LISTED HERE. It is simply contact information. This is not a complete list. If your surgeon is not listed, feel free to contact a admin with the information.

    Moderators:

    1. Jennifer

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    • Threads: 58
    • Posts: 60

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    1. Asia

      Moderators:

      1. Jennifer

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      • Threads: 1
      • Posts: 1

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    2. Australia

      Surgeons in Australia

      Moderators:

      1. Jennifer

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      • Threads: 1
      • Posts: 2

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    3. Canada

      Surgeons in Canada

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      1. Jennifer

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      • Threads: 1
      • Posts: 1

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      Ontario Go to last post

      by Jennifer

      06-20-2011, 08:16 PM

    4. Europe

      Surgeons in Europe

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      1. Jennifer

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      • Threads: 3
      • Posts: 4

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    5. United States A-D

      Surgeons in Alabama, Alaska, Arizona, Arkansas, California, Colorado, Connecticut & Deleware

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      1. Jennifer

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      • Threads: 8
      • Posts: 8

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    6. United States F-K

      Surgeons in Florida, Georgia, Hawaii, Idaho, Illinois, Indiana, Iowa, Kansas & Kentucky

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      1. Jennifer

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      • Threads: 9
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    7. United States L-M

      Surgeons in Lousiana, Maine, Maryland, Massachusetts, Michigan, Minnesota, Mississippi, Missouri & Montana

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      1. Jennifer

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      • Threads: 9
      • Posts: 9

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    8. United States N-O

      Surgeons in Nebraska, Nevada, New Hampshire, New Jersey, New Mexico, New York, North Carolina, North Dakota, Ohio, Oklahoma & Oregon

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      1. Jennifer

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      • Threads: 11
      • Posts: 11

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      Nebraska Go to last post

      by Jennifer

      06-20-2011, 06:27 PM

    9. United States P-T

      Surgeons in Pennsylvania, Rhode Island, South Carolina, South Dakota, Tennessee & Texas

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      1. Jennifer

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      • Threads: 6
      • Posts: 6

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      Pennsylvania Go to last post

      by Jennifer

      06-20-2011, 06:17 PM

    10. United States U-W

      Surgeons in Utah, Vermont, Virginia, Washington, Washington DC, West Virginia, Wisconsin & Wyoming

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      1. Jennifer

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      • Threads: 8
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  1.    

  2. Sticky Thread Sticky: Sleeping Post-Op Guide

    Sleeping Post-Op:<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" /><o:p></o:p> <o:p></o:p> What has happened? Suddenly...

    Started by Lisa‎, 10-30-2009 01:03 PM
    2 Pages •
    1 2
    • Replies: 12
    • Views: 3,886
    dancingnancy97
    09-21-2011, 07:09 PM Go to last post

  3. Sticky Thread Sticky: Bridges4Kids- US resources by state

    This has some great information for programs most people are not aware are available, and craniosynostosis is a qualifying condition for many of the...

    Started by Katie‎, 02-02-2011 10:11 PM
    • Replies: 2
    • Views: 1,417
    momof2withcranio
    02-07-2011, 01:56 PM Go to last post

  4. Sticky Thread Sticky: Growth and Development Guide

    Hi all, here's the info i said i'd post earlier.. This is per Michigan's guidelines, although I'm sure it's pretty unified. When checking these...

    Started by Jenny‎, 04-29-2008 03:12 PM
    • Replies: 0
    • Views: 2,880
    Jenny
    04-29-2008, 03:12 PM Go to last post

  5.    

  1. Article with up-to-date info on metopic synostosis

    I found an excellent article which gathers all recent data from research studies on metopic cranio....

    Started by Mindy‎, 02-02-2013 10:27 PM
    • Replies: 2
    • Views: 5,930
    bluefirekitten
    05-13-2013, 11:49 PM Go to last post

  2. Surgeons who will work with international low-income families

    I am wondering what surgeons will work with families who are from other countries that are low-income and cannot afford the surgery? And possibly...

    Started by maztec‎, 03-30-2013 09:25 PM
    • Replies: 2
    • Views: 1,936
    Janet
    04-19-2013, 08:51 PM Go to last post

  3. Craniosynostosis videos

    Have you seen these videos? http://www.craniosynostosis.net/video-gallery/ They are all helmet therapy surgeries but very interesting to watch...

    Started by SummerEhmann‎, 01-23-2012 10:25 PM
    • Replies: 1
    • Views: 1,876
    BabyGabey
    01-24-2012, 10:35 AM Go to last post

  4. research questions??

    I'm just trying to find some new research info. We all know there is a massive shortage of info on craniosynostosis and a lot of miseducation. I'm...

    Started by madiskysmommy‎, 12-30-2011 11:40 AM
    • Replies: 6
    • Views: 1,275
    Mici
    01-13-2012, 10:26 PM Go to last post

  5. Hospital/Surgeon experiences in Boston area

    Hi. Hope this is the right area to post. My daughter was just diagnosed with bicoronal cranio. She probably also has a syndrome, but genetic...

    Started by jamiesmom‎, 11-28-2011 01:48 AM
    • Replies: 5
    • Views: 1,218
    jamiesmom
    12-01-2011, 02:48 PM Go to last post

  6. PEEK (implants)

    Just wanted to share a couple articles about the implants that Fiona is going to have done. She is having titanium plates put in over the soft spots...

    Started by Janet‎, 12-23-2010 09:22 PM
    3 Pages •
    1 2 3
    • Replies: 20
    • Views: 3,998
    jjmc123
    11-10-2011, 03:00 PM Go to last post

  7. AZ Craniofacial Holiday Party 2011

    To all my AZ Cranio Families.. the Arizona Craniofacial Foundation is having there annual Holiday Party! Please let me know if you would like more...

    Started by Carmen77‎, 11-07-2011 12:51 PM
    • Replies: 2
    • Views: 1,326
    Carmen77
    11-07-2011, 02:31 PM Go to last post

  8. Wink Contacting Media about Craniosynostosis

    So I sat down with 2 reporters from a local newspaper here in Colorado and went about 100 miles an hour telling them all about cranio (I mean I felt...

    Started by SummerEhmann‎, 10-21-2011 06:59 PM
    • Replies: 1
    • Views: 1,042
    Janet
    10-24-2011, 08:18 AM Go to last post

  9. Info on good NS's in Virginia needed

    Well, we are once again shopping for NS's. We can't see Dr. Carson since he's not part of our insurance. The one that we had been using apparently...

    Started by fullhouse3b2g‎, 01-12-2011 01:50 PM
    2 Pages •
    1 2
    • Replies: 11
    • Views: 2,219
    amclaughlin10
    10-23-2011, 10:08 PM Go to last post

  10. Arizona Craniofacial Awareness Picnic

    September is Cranialfacial Awareness Month! CCA is having picnics in different cities, and I would like to see if we can organize a picnic for all...

    Started by Carmen77‎, 07-29-2011 06:52 PM
    • Replies: 1
    • Views: 1,273
    Kymburli
    07-30-2011, 12:39 AM Go to last post

  11. Gestational Diabetes and Cranio

    As I sit and wonder why my daughter has Craniosynostosis, I can't help but think it may have been caused by the medication I took while I was...

    Started by brynnsmom‎, 12-22-2010 01:57 PM
    2 Pages •
    1 2
    • Replies: 17
    • Views: 3,517
    Nicole Epstein
    07-18-2011, 05:33 PM Go to last post

  12. Moved: Siblings?

    Started by Chrfath‎, 07-07-2011 07:30 AM
    • Replies: -
    • Views: -
    Chrfath
    07-07-2011, 07:30 AM Go to last post

  13. What's your child's ethnicity?

    Just curious and wanting to do an informal study of my own. My husband has Native Indian heritage, and I've come across several moms now who have a...

    Started by Ava's Mommy‎, 09-20-2010 06:07 PM
    6 Pages •
    1 2 3 ... 6
    • Replies: 51
    • Views: 7,470
    vidya
    06-28-2011, 10:38 PM Go to last post

  14. position during birth or environment???

    What is craniosynostosis? A baby's skull has 5 thin bony plates that are held together by a fiber-like material called sutures. The sutures allow...

    Started by momof2withcranio‎, 12-30-2009 08:16 AM
    3 Pages •
    1 2 3
    • Replies: 22
    • Views: 4,594
    jochi
    06-26-2011, 09:21 PM Go to last post

  15. BBC Documentary

    I know a few of you overseas expressed an interest in watching the documentary the BBC aired a few weeks ago filmed at Oxford. I now believe you...

    Started by Sam Y‎, 06-15-2011 04:04 PM
    3 Pages •
    1 2 3
    • Replies: 20
    • Views: 3,596
    NateJrMom
    06-16-2011, 10:25 PM Go to last post

  16. Help with fighting UHC for helmet coverage?

    Hi- I'm new here and totally overwhelmed. Daughter Lucy born 3/25/11 will be having surgery on 6/29. We've been told that UHC is denying coverage...

    Started by lwsmith‎, 06-16-2011 10:28 AM
    • Replies: 2
    • Views: 1,134
    Sophia's_mom
    06-16-2011, 01:14 PM Go to last post

  17. Question Bone Paste

    Have any of your children had bone paste? It looks like that will be the road we will be facing and i was just wondering what the surgery was like (...

    Started by BrendansMummy‎, 11-08-2010 03:09 PM
    2 Pages •
    1 2
    • Replies: 12
    • Views: 3,551
    RnB
    05-31-2011, 01:37 PM Go to last post

  18. Question Speech Question

    So I'm looking for advice from anyone whose child has or is getting speech services. My daughter's speech is only understandable in context because...

    Started by JIC0930‎, 05-20-2011 02:09 PM
    2 Pages •
    1 2
    • Replies: 13
    • Views: 2,475
    Jess33
    05-30-2011, 06:07 PM Go to last post

  19. I googled & i'm a little upset..

    I found exact matches of andrews feet..Bi-lateral Metatarsus Varus. So while its treatable with casts and/or surgery, no dr has caught it agreed...

    Started by andrews mommy‎, 04-26-2011 02:09 AM
    • Replies: 5
    • Views: 1,728
    tams
    04-27-2011, 12:12 AM Go to last post

  20. Got an article from LWW

    Highlights of the Proceedings From the 13th International Congress of the International Society of Craniofacial Surgery: ISCFS 2009 James P....

    Started by Janet‎, 04-01-2011 08:39 PM
    • Replies: 0
    • Views: 1,775
    Janet
    04-01-2011, 08:39 PM Go to last post
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