Forum: Craniosynostosis Chat

Hi. My son was diagnosed with sagittal and he is to undergo surgery on June 1st. As if that was not worrisome enough, my pediatrician told me that he...

So far the insurance wants us to go to their hospital Children's Mercy in KC and see Dr. Singhal. The more I have researched about Dr. Singhal the...

Hi there. I'm sorry I haven't been around much lately. I really want to be here to support everyone, but life has been really hectic lately. I...

My son, Gabe, was referred to a neurosurgeon for a metopic ridge. While waiting for the appt, I pretty much drove myself crazy thinking some days...

Hello All! I need your advice. Jesse is now 18 months old and still not walking. I met with his pediatrician today, and he wants us to go back to...

I think it's what andrew has..under his scar theres a big marble sized bump that is squishy, i assume its fluid but is it something to call about or...

Hi everyone, I know I dont post in here very much, so il give you a quick recap on my suituation. My son was born with metopic, I can see it now...

I recently saw an ENT for some ongoing issues. He stuck a probe up my nose, and he found that I have a deviated septum on my right side. Actually,...

Hello All, I am new to this forum, but look forward to sharing thoughts with other cranio-parents. My son Joseph is now 12 years old and was born...

we havent had our referral appointment yet, so have no firm diagnosis, but my son appears to have sagittal synostosis. I have noticed bulges above...

Hi everyone Scans went well and shows no pressure and sufficient room for his brain to grow for a few more month.They have told us that his surgery...

Hello. It's been 10 months since my son had a full CVR for his metopic cranio. He looks so beautiful w/ his new forehead! We have had him in...

Jessie will be having her surgery on August 11th. It seems so far away but I know it will be here before we know it!!

Hi, my son is a month old now and im waiting to get an appointment to see the cranialfacial team. the hospital think he has metopic cranio. im...

We are newly diagnosed sag parents of a two month old son. We always knew his head was slightly odd shaped, but as first time parents with few...

Hi! My son had his first PCVR when he was just 3 months old. He is getting ready to have his second surgery in October (he will be 18 months old)....

Long story short... Levi has been having some feeding issues... Zantac, Maalox, and Nexium have not helped... so his pedi sent us for a feeding...