Forum: Craniosynostosis Chat

For those of you on CK FB, I apologize for the duplicate post, but I am totally stressing after reading Samantha's radiology image report. In a...

Whats the difference? First time around, Jacob was just having the "big" surgery compared to the "little" one. We never used medical terms with our...

Anyone from atlanta on here? I need dr recommendations.

We just took harley to the park to play on the swings and we got our first comment about his head. A 7 year old little girl came over and said "His...

I have a 6 wk old with sagittal cranio. She has been vomiting quite a bit and I'm wondering if it's related to the cranio. She has been on the...

Finally, we have a date September 8, Asger will go through his first cranial surgery. I look enormously forward to it's over. it's so hard,...

Hi, I was reading my sons xray report and there is a word on it and i googled it and it means that the eyes are set closed to each other. It says...

We are gearing up for Miles' endoscopic SAS in Charleston, SC and have concerns that we haven't done enough research about the spring surgery and no...

Ok i tried searching and there is so so so much to dig through! I also checked the Iowa surgeon listing and can't find anything. So Iowa mommies is...

As my baby daughter drifts off to sleep with her thumb in the mouth, I sit in bed with my five year old daughter lying beside me as she watches...

Hello, I too, need your help. My baby is 5 weeks old, and he was born 5 1/2 weeks early, so basically he's reached his due date. He had...

Hiya everyone, our wee one is due to have her surgery in Oxford in 3 weeks time and was just wondering if anyone knows if both my husband and...

Can anyone who had CVR (preferably CVR-FOA) done in the last three years please tell me how much did the hospital+surgeon billed your insurance (or...

So its been one week today since Pierson's cvr. It was alot more than I planned for. He bleed alot and had to have four transfusions and some frozen...

Can someone refer me to a good site which will give me info about the genetics part of craniosynostosis? Maybe something that is easy to understand?

I noticed many of you found out your baby had cranio at birth or within a short period of time after. It makes me wonder why Samantha's pedi didn't...