Forum: All Craniosynostosis

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  1. Craniosynostosis Chat

    This is the place for general questions, discussions, and updates about craniosynostosis.

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    • Threads: 6,017
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    1. Cranio Gear

      A place to find items made just for our special little ones, most created by members. Have a unique cranio product to share? Post it here!

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      • Threads: 7
      • Posts: 76

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    2. Craniosynostosis Without Surgery

      Was surgery not recommend w/ a diagnosis of cranio? Or did you choose not to do surgery? This is the place to share your stories and questions.

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      • Threads: 102
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  2. Testing and Surgery

    Have a question about testing or surgery? Want to share CT scans or surgery pictures? You found the right forum!

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    1. Carmen77

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    • Threads: 3,002
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    1. Surgery and Recovery Photos

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      1. Carmen77

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      • Threads: 293
      • Posts: 3,595

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      Private

    2. Questions to Ask

      The following threads are a lists of questions we have come up to help you when meeting with your doctors

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      1. Carmen77

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      • Threads: 36
      • Posts: 314

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    3. Items to bring to hospital

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      1. Carmen77

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      • Threads: 18
      • Posts: 164

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    4. Post Operative Care

      Please use this forum for post-op experiences. Post your concerns, questions and advice. Please remember- with any serious medical concerns, you should talk to your child's doctor!

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      1. Carmen77

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      • Threads: 204
      • Posts: 2,136

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    5. Helmet Therapy

      For tips and questions about helmet therapy.

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      1. Carmen77

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      • Threads: 267
      • Posts: 2,420

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  3. Resources

    Here's the spot for educational informaion and discussions.

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    • Threads: 162
    • Posts: 1,114

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    1. Surgeons By Area

      We are listing contact info for surgeons that members have used for cranio surgery. WE ARE NOT ENDORSING ANY SURGEON LISTED HERE. It is simply contact information. This is not a complete list. If your surgeon is not listed, feel free to contact a admin with the information.

      Moderators:

      1. Jennifer

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      • Threads: 58
      • Posts: 60

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  4. Syndromes

    Discussions and questions about syndrome related craniosynostosis.

    Moderators:

    1. craniomommynbaby

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    • Threads: 153
    • Posts: 1,445

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  5. Cranio Adults

    A forum for adults with existing or corrected cranial anomalies to talk, support, and share information with each other.

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      • Threads: 112
      • Posts: 811

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      1. Cranio Adult Welcome Mat

        A great place to get started and introduce yourself.

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        • Threads: 21
        • Posts: 310

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      2. Health Issues / Cognitive Disabilities

        Discuss health issues and/or cognitive disabilities related to being a Cranio Adult. For example Dyslexia, Learning Disabilities, Migraines, Soft Spots, etc.

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        • Threads: 8
        • Posts: 51

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      3. Depression / Anxiety

        A place to discuss feelings of anxiety or depression related to being a Cranio Adult.

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        • Threads: 2
        • Posts: 11

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      4. Diagnosis / Treatment / Surgery Options

        Read about the diagnosis / treatment / surgery experiences of other Cranio Adults or post your own.

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        • Threads: 5
        • Posts: 22

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      5. Questions / Inquiries

        Have a question related to being a Cranio Adult? Looking for information and can't find it? Post your questions/inquiries here so the forum can try to help.

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        • Threads: 20
        • Posts: 168

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      6. Cranio Adult Living

        Talk about life as a Cranio Adult. Share experiences, offer insights, offer support, or just vent.

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        • Threads: 17
        • Posts: 169

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      7. Cranio Adult Lounge

        Password Protected. This is reserved for Cranio Adults only.

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        • Threads: 2
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        03-24-2013 12:08 AM Go to last post

      8. Information / Resources

        Find or provide information on Craniofacial Doctors, Specialists, Surgeons, Centers, etc.

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        • Threads: 8
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      9. Medical Literature / Academic Papers

        Want to learn more about craniofacial medicine? Here's a good place to start.

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        • Threads: 29
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      10. Cranio Adult Feedback

        Have ideas / feedback related to the Cranio Adult Section? Post it here!

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        Never