Janet

Well this is it, no turning back now.

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I can see the light at the end of the tunnel finally. We heard from sick kids today, we have an appointment on Sept 23rd (3 days before her 4th year post op) to see Dr. Phillips. The surgery is going to be booked for some time in October. I have such mixed emotions right now, I have waited since December 2nd 2010 for this. I booked her pre-op check up with our family doctor.
We have so many questions about the actual surgery and the implants. I have been trying to do research, but I can’t find anything on children with titanium and or peek implants in their skull and it’s not like there is anything on adults who have this done as a baby.
I feel so relieved that this is happening, but I feel devastated that she needs to have a second surgery. I wish I could take her place.
So just over a month until everything starts.

Updated 08-24-2011 at 04:38 PM by Janet

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Comments

  1. Nezzy's Avatar
    I can understand how it is bittersweet. Could you ask Alan or Dr. Phillips to supply you with some research on the PEEK implants? I would think they would know of some or maybe even have done their own research.
  2. Jennifer's Avatar
    & a million times over. I hope your appointment on the 23rd will give you some of the peace you need. It's never easy to hand your little one over...even if you've already done it before. As you know, we are here for you. I'm sure Fi-bug will amaze you yet again.
  3. Monkey'sMommy's Avatar
    While I am sorry for the angst and mixed emotions you have right now, I am so so so happy for you that you finally have a timeline and you can begin to plan. It will all be over in two short months. I hope it goes by quickly for you!
  4. jjmc123's Avatar