It doesn't end!
byon 06-11-2012 at 04:49 PM (1035 Views)
I am writing this from Vienna where I am with my family for my son Aarambha Jyoti (AJ)'s follow up. He's now 5 months post op, and the doctors seemed happy with his progress. He still has very big soft spot and other frontal sutures because of the correction at the time of surgery, and the docs say that this will take a few years to close. So to have got the green on that front was a relief!He has however now been confirmed to be hypotonic. We are taking him in for the nerve conduction test tomorrow to see if his nerves are ok...a bit apprehensive about it but I guess it needs to be done! Somehow I seem to have easily slipped from one journey into another...and even the happiness that should have accompanied his recovery post surgery has been slightly dampened....it just doesn't seem to end somehow!